Category Archives: All

SEN/EHC Support

Contact helpline

Contact (for families with disabled children) was founded by parents.       Have a look at Who are we?        Click page icon to find out about their helpline.       You can get in touch with Contact by phone or email.       See also their FAQ tool.     new

Social communication outreach

Pupils on the autistic spectrum may find it hard to fit in at mainstream school or college.      Settings may not have the expertise to adapt to the needs of such pupils.       The  Working Together Team may be able to help.        Click icon for the basics.       See also How it works for more detail.         updated

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If you think that your child may have Special/Additional Educational needs (SEN), you may need to find someone who will take the time to listen and discover for themselves what your child is like and what he or she needs.        It might have taken you years of devoted attention to piece together your own insights and it may take some time for others to catch up with you.       See also:  Making it work

The first port of call for parents with concerns about their child’s Special Educational Needs (SEN) may be the school Special Educational Needs Co-ordinator or SENCo for short.

Ombudsman complaints

Click icon to find out how to complain to the Local Government & Social Care Ombudsman.        See Education news for article about trends.

SEND support

Click icon to see the official Lincolnshire SEN support index.

LIASE

LIASE provides free and confidential information, advice and support to parents of children and young people with Special Educational Needs and Disability.         This might be a good place to look next for parents with concerns about SEN.       Click icon for an introduction.       It has downloads in right margin,  e.g.  Support in mainstream school.

Phone icon   Acall back’ can be requested on 0800 195 1635.       Email: liaise@lincolnshire.gov.uk

Phone iconEducational psychology service

The Educational Psychology Service has a telephone helpline for parents.        It is advertised by Lincolnshire County Council and is available on a Tuesday from 1.30pm to 4.00pm.       Phone  01522 554673 and ask for the helpline.        See:  How they work     FAQ    Charlie’s case
To help children prepare for a consultation, see pupil’s guide.

See also Families for Child and Adolescent Mental Health Services (CAMHS).

Ace Education

ACE Education provides independent advice for parents on education issues in England.       It outlines their confidential telephone advice line.        See also call charges.    0115

EHC support

ehc-support-poster

Introduction

ehc-support

Young people

Core Assets Children’s Services offer free independent support with the new Education, Health and Care (EHC) plans – for children and young people with SEN.
Parents and young people can apply directly for assistance, or simply make enquiries, via Referrals.       Chose the large parent/carer button.        See  FAQ  and  website  for more more information,  e.g.  this support is available in Lincolnshire and Northamtonshire.

We work in partnership with Liaise, but focus specifically on the EHC assessments and the transfers from statements to EHC’s, whereas Liaise support all SENd concerns.

Education Rights

The National Autistic Society has several pages about extra help in school.       Click page icon to browse.        If you cannot find what you are looking for try the phone icon on the right to find out about their Education rights service.       You can phone or email.

Legal

Independent Parental Special Education Advice (IPSEA).            They offer legally based information and advice to help get the right education for your child or young person.        Click icon for their website.        Have a look at:   Who we are       Our services       Get support     Sarah’s story

Appeals

  • IPSEA:   When Local Authorities make certain decisions about the education and/or training of a child or young person with SEN, there is a right of appeal  to an independent Tribunal             See: SEND tribunal           website
  • Coram legal centre        Legai Aid may be available if and EHC assessment is refused.     Officially legal aid comes through Coram.     (Liase)            See:  how we do it             website

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.       See disclaimer.

Coronavirus resources

Lockdown learning

BBC Bitesize is currently aiming its free online interactive resources at the lockdown situation.       So what is Bitesize and how do you use it?        See About us         Click icon to browse or get started.

Education technology

There is a range of help available to access remote education to those who qualify.       Parents cannot apply directly but need to contact schools to get help.      Click icon to find out more.       For example data allowances for mobile phones.

Tips

The National Autistic Society has produced a range of tips for autistic people and families.        Click icon to browse.

Government guidance

SKDC has launched its Covid community information hub.      Click icon to get the latest for the Grantham area.

  • Phone: 01476 406177 / 406358 : 8am – 7pm
  • Email:  SKCommunityHub@southkesteven.gov.uk

See also  for the UK government’s complete Guidance and support

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Parent to parent

The National Autistic Society has set up a Parent to parent emotional support helpline.       Phone them or fill in an online form to request a phone call.       Click icon to find out more.

Return to school

Parents

The National Autistic Society has set out guidance for parents of children on the autistic spectrum about the return to school in September.       Click icon to view.       See also directive to schools about support of SEND pupils.        new

EHCP

The NAS has also set out answers to questions about the way the return to school in September affects children with an Education, Health and Care Plan.        Click icon to view. 

Lincolnshire Parent Carer Forum seem to do quite a bit of what you might call heavy lifting.        Click icon to see their Coronavirus articles on the right hand side.        Notably, a ministerial SEND letter, of Jun 2020, about plans for the return to school.

Ambitious about autism

On the Ambitious about Autism website, find:  Home > About autism > Coronavirus
– The Coronavirus resources page has some easy reading downloads.
– They have a couple of pages about the return to school.       Look for it in Corona > Education.       new

https://www.ambitiousaboutautism.org.uk/

They have also published a children’s story, The world has turned upside down.        Click icon and scroll down to find it.       There is also a link to their website at the top of the Twitter feed.

Resources and updates

National Autistic Society has collected together resources and news for the current situation.        Click icon to browse.        Also:

  • Here is an NHS fact sheet about Coronavirus for kids.
  • The Association for Child and Adolescent Mental Health has produced a podcast featuring two clinical psychologists about getting children with autism through this time of upheaval.
  • The Challenging Behaviour Foundation has its own Covid-19 information and resources page.       It includes information about legal rights.        They have some ideas to help to make hand washing fun.

Shine

Shine has just put out a newsletter that addresses some issues of current interest.        Click icon to browse.       new

Shine Lincolnshire, the mental health support network, are putting on virtual coffee mornings for carers in Lincolnshire.      They are regularly on Mon, Wed & Fri on Zoom.      See how they work.      Their website has details about all the latest events.

Shine aims to put people with mental health issues in touch with sources of support.       See Shine basics

Emotional wellbeing

There seem to be some new  resources and services developed to support for emotional wellbeing and mental health in Lincolnshire.        Click icon for GAIN guide.

The friendly garden

The Friendly Garden is the location for a range of garden related events organised by the Sage Gardener.       They have made changes to the way they do things to make events COVID safe so that members can make the most of the outdoors and the natural world and feel better.      They are geared up for older people rather than children.        See Mainstream activities to find out more.

Scams

With current Coronavirus restrictions it seems wise to be aware that criminals have been seeking to exploit increased dependence on the internet.      This BBC article highlights efforts in the UK to combat on-line scams.       Click icon to view.       Here are a few pointers for safeguarding yourself.

Social story

Here is a social story about seeing people with face masks.        Click icon to take a look.       If it is not just what you want, does it give you any ideas?       See also: how to write your own         free images

Face coverings

Professor Ellen Townsend makes a plea for compassion for those who cannot wear face coverings.       She outlines the many reasons why some people may not be using a face covering.       Professor Townsend leads research at the School of Psychology, University of Nottingham.
Click icon for article.       See also:  Mask anxiety

Health

The NHS continues to update its Coronavirus page.        It is straight forward to browse.        Click icon to view.

Lincolnshire heritage & culture

Lincolnshire County Council have a number of short stories from long ago, produced by Lincoln Castle, on Youtube.       Click play button to see the list.

Lincoln Castle have also published a free audio guide download to the castle.       Click download to scan QR code with your Android or iPhone.

Key terms

Here is a table of school years and ages:

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.        See disclaimer.

Home Education

Doc iconResources

West Suffolk College has created free online resources and activities to support home schooling.       Click icon to browse.

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What does home education mean?        Who is responsible for what?       See:  FAQ on Home Education Special website for quick and clear answers for the UK.

Doc iconTaking over the responsibility can be an attractive option for some parents, but is it for you?

  • To read about parent’s experiences  click icon.       A net mums search on home schooling should get a good list of results.
  • The Family Education website offers guidance and some basic resources:   Pros       Cons        Guidance & resources        It is part of the  Family Education Network based in Boston, USA and linked to Pearson Education, Inc.

Doc iconFormal guidance

Elective home education is the official name.        Click the icon on the left for the information and resources Lincolnshire County Council publishes.       It provides a step by step guide as follows:     

The UK government also produces guidance about home education.       These set out a parents rights and responsibilities. 

Inspiration

This outnumbered mamma is a homeschooling mum’s web site from the USA.      Her inspiration page offers tips in a pleasant style with the human touch.

Links to browse

  • Tips – A fairly common sense checklist if you are an autism parent.         See also: ideas.
  • ELL – Addressing special educational needs where English is a second language for pupils

Networking

  • Home Education Network points visitors to resources in their part of the UK.
    For the East Midlands see:   Home         Local Groups                    Notice the tabs along the top:  Home, Advice, Local Groups, Useful Links.
    For the UK see Index and choose your region of the country.
  • Education Otherwise is another source of information in the UK.
    For the Lincolnshire login to Facebook to see:  Homeschool Lincolnshire search results.
    For other counties and regions see sidebar to navigate site.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Related Calendar

Virtual workshops

Lincolnshire Parent Carer Forum are arranging two free series of workshops on Zoom.       One is aimed at friends, relatives and carers of children or adults with additional needs.       Dates range from 5 Jan 10 Feb 2021.      It is called Waving not drowning!        Click icon on the left for Waving not drowning!

They are also putting on LPCF week of SEND.  –  from 25 Jan – 29 Jan.      These are aimed at parents and carers of children with additional needs and professionals who work with them.       Click icon on the right for poster.

More workshops

Contact has quite an extensive range of  virtual workshops for families with additional needs in Jan – Feb.       See workshops for more information.

Positive behaviour

There were a few places left as of Tue afternoon for a Promoting Postivie Behaviour and Autism Workshop.      The workshop will be on Fri 4 Dec at 9:45am and it will be online.       Click icon for details.

Lincoln conference

PAACT is taking bookings for the 22nd Lincoln annual autism conference, Mon 16 – Fri 20 Nov 2020.       Click icon for details.

Lincoln Castle

Only Lincoln Castle grounds are open to the public until 2 Dec.      Click page icon to see visitor update.       Exclusive autism-friendly Explorers sessions at the castle have not yet re-started, though, as of Sept 2020.       Next one may be in the evening.       Click castle icon for background information.

The Groove

The Guildhall Arts Centre has a few virtual events and on-line resources but The Groove has not re-started as of Sept 2020.      Click page icon to set what they have to offer.

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The events on this page are chosen because they may be of interest to a child and/or adult on the autistic spectrum.         See also Local Groups for autism support groups in the South Lincolnshire and beyond.        They put on events in their area.

Dysart Park Fun Day

Unfortunately Dysart Park Fun Day has been cancelled for 2020.       Click icon and scroll down to find the post cancelling all their events.

Family dog workshops

How  pet dogs can help families that have a child with autism.       Dogs for Good has workshops planned for 2020.
Click icon for locations and dates e.g.  10 Jul Lincoln21 Jul Leicester.      Check again nearer the time for Coronavirus updates.

Makaton course

The Makaton course for Friday 20 Mar at Belton Lane Children’s Centre, Grantham has been cancelled

Messy

Zoo Co presents a visual story with original music, puppets and tap dancing.        Performed by a deaf and hearing cast.       This relaxed performance, created in partnership with ADHD Foundation, will be at the Guildhall Arts Centre in Grantham on 17 Feb.       Click icon for web page or poster thumbnail.

Signposting

Lincolnshire Parent Carer Forum (LPCF) will be putting on a general signposting event on Fri 31 Jan in Hubberts Bridge, near Boston.
It will be free to parents and carers.         Click icon and scroll down for details.        See map

Mental health engagement

Give Lincolnshire NHS your feedback on mental health community rehabilitation.         Click icon  for dates in January around the county.

Cinderella

Polka Dot Pantomimes are performing another season at the Guildhall Arts Centre theatre in Grantham.       Click icon for information about relaxed performances.        They are scheduled for 2nd Jan 2020 at 2pm & 6:30pm.         Phone the booking office using (01476) 406 158  or click picture for available seats at:  6:30pm       (2pm  seats sold out.)

Farm quiet hour

Rand Park Farm, near Lincoln, will be putting on a quiet hour for children with additional needs and their families.        Date: 14th Dec, 9 – 10am.        See map        farm layout

Making sense of the senses

Free conference with Dr John Biddolph on Wed 4 Dec at The Fleet, Peterborough.       Click icon for more information including booking details.

Autism Conference

PAACT is taking bookings to attend and for information stands for annual conference in Lincoln on Tuesday 19th Nov 2019.
The venue will be The Showroom, Tritton Road, Lincoln, LN6 7QY.        Click icon for poster.        See also map

Lincoln Castle Explorers

An exclusive opportunity outside of opening hours for children and adults on the autistic spectrum to visit with their families.        Lincoln Castle Explorers, 2nd Nov, 9am – 10am.        Click page icon for event details and to book or castle icon about autism-friendly opening.        See map.

Makaton course

An early years specialist will be running a Makaton course on Friday Oct 4th at Belton Lane Children’s Centre, Grantham.       It will run from 9.30 – 12.30pm and then 12.30pm until 3.30pm with a working lunch.       She will cover Level 1 in the morning and Level 2 in the afternoon.      The cost is £15 per level payable to the trainer on the day.        Morning session recommended for parents.       If you would like to attend contact: ella.mayfield@lincolnshire.gov.uk         See Speech & language about Makaton.

Signposting

Lincolnshire Parent Carer Forum (LPCF) will be putting on a general signposting event on Wed 30 Sep in Market Rasen,        Click icon for details.        See map

Harrowby football match

Harrowby vs Cottesmore football match on Saturday 14 Sep at Harrowby United’s Dickens Road Community Stadium, Grantham, NG31 9QY.       Free entry for under 16’s and carers with Carer’s Allowance letter.         Click icon for poster.        See also map.

Dysart Park Fun Day

GAIN will have a stall at The Dysart Park Fun Day again this year, on Sunday 7th July 2019, 11am to after 4pm.       Click poster thumbnail for official information.        See also:  Facebook      map.

We would be grateful for any donated tombola prizes – old toys, books, food/drink, plants, trinkets, toiletries, teddies, etc (we won’t turn anything down).        Please contact GAIN at
(01476) 855 070 to arrange to drop off or collect.        Thanks to everyone who has already donated prizes, including:  Poundland, Home Bargains, The Works and Subway.

Makaton course

An early years specialist will be running a Makaton course on July 5th at Belton Lane Children’s Centre, Grantham.        It will run from 9.30 – 12.30pm and then 12.30pm until 3.30pm with a working lunch.        She will cover Level 1 in the morning and Level 2 in the afternoon.       The cost is £15 per level payable to the trainer on the day.

Healthy Conversation

The NHS will be holding public engagement drop in sessions around Lincolnshire during May and June.       They want to take soundings about the future of local  health services.

Family dog workshops

Workshops for families with children diagnosed with autism in Lincoln on 7 Jun.       Click icon for details.        See Growing up about Dogs for Good.

Signposting

Lincolnshire Parent Carer Forum (LPCF) will be putting on a general signposting event on Wed 22 May in Lincoln,

Overcoming trauma

Hesley are putting on a free event for parents about overcoming trauma and building resilience for people with autism.        It will be on 8 May in Nottingham.        Click icon for details and to book.

Easter Quest

An exclusive opportunity outside of opening hours for children and adults on the autistic spectrum to visit with their families.        Alice in Wonderland Easter Quest at Lincoln Castle.        Follow the white rabbit and seek out the clues to solve the Mad Hatter’s riddle and claim your chocolate reward.        Sat  20th Apr, 9am – 10am.        Click icon for more information.

East Midlands events

Workshop for parents of special needs children – Coping with Challenging Behaviour.       Wed, 3rd Apr, 10am – 12pm.        25 FREE places available for parents.        At Voluntary Action Rutland, Rutland Community Hub, Oakham, Rutland, LE15 6RB.         To book your free place email westmids.office@contact.org.uk with your name, address and telephone number.        Please also state the age of your child with special needs, and the nature of his/ her disability.        Click poster preview to view.

Professionals

Professional practice

The National Autistic Society has many pages about professional practice.       Click icon to browse their list.
More specifically see:  teachers        Also transition guides:  to primary school        leaving school        mental health

Employ autism network

Ambitious About Autism are looking for people to sign up.       They are seeking employers, educators etc.       Click icon to find their Employ Autism Network page.

Finished at school

Ambitious About Autism published a guide at the end of their Finished at School(FaS) campaign.       The learning it captured is intended to support colleges in developing effective practice to support learners with autism to make a successful transition from school to college and into adult life.        Click icon for guide.

See also:  www.ambitiousaboutautism.org.uk         Twitter has a link to the website at the top of its display.       Once there navigate to:

Menu > Who we are > Campaigns > Finished at School 

Team Around the Child

As a guide, a TAC is required where two or more support services are involved.        Click icon for Lincolnshire Council guidance and assessment portal.

Here is a one stop resourcefor those in need of Teams Around a Child: Early Help Lincolnshire       Here is the TAC website establised by Peter Limbrick who developed TAC.       This link gives a feel for how things might work: TAC meetings

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This is a page for professionals who may be quite new to autism.        See also:  Autism awareness        SEN/EHC Information         Sensory sensitivity for Sensory Processing Disorder under SPD.

TEACCH

Treatmentand Educationof Autistic and related Communication Handicapped Children (TEACCH) is another broad brush approach to working with children or adults with autism.        It has more to do with values and priorities than specific techniques.        Click icon for more detail.
The NAS Early bird programme draws on the TEACCH approach.        See also:  Autism UK       Wikipedia

Training courses

Supporting inclusion

Click icon for Lincolnshire Council pages about supporting inclusion.       It covers aspects of special educational needs & disabilityfor professionals.        They also has a specialist school support services page in  EduLincs            (new)

Lincolnshire has four integrated locality teams.       SENCOs from all early years providers, registered childminders and out of school club managers can request Early Years inclusion support.        See Early years support         It has an inclusion support referralform at the bottom of the page and email addresses.

Working together team

The Working Together Team offers support to schools and academies for students with a wide range of social communicationand / or learningneeds.        See also:  detail          SEN Support – Scroll down to Social communication outreach.

Flash Cards

Sparklebox offer free teaching aids for children with special educational needs.          Here is the Speech page.        Their terms of use are brief.

Co-ordination

Early years can extend as far as the age of 18 with ESCO.       This is short for Early years Support Care & Co-ordination,

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Speech and language

Mothers’ insights

Researchers at two Universities in the USA interviewed mothers of non-speaking autistic children to find out how they form bonds with their children.       They noted the vital role of the mothers in interpreting the behaviour of their children.       Click icon for article from UC Santa Cruz

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Where to start?

Talking Point offers a comprehensive guide to children’s communication issues.         Click icon for guidance and choose from the menu list down the left hand side.         It may be a good place to start.         You might want to look for the following:

  • Ages and stages of development – what is normal?
  • Some children struggle– what to look out for.
  • What can I do?      Finding the right school.

Talking Point provides services in Lincolnshire.

What to try?

  • The National Autistic Society (NAS) has a guide to visual supports.
  • This retail site has an introduction to using PECS and British Sign Language (BSL)          See also PECS boards below.
  • Here are some parent’s opinions about which to use and this discussion goes into a bit more detail.

Total communication

Options group have produced a helpsheet about the development of communication skills in people on the autism spectrum.         The author is a specialist speech and language therapist.          Click icon to view.

NHS speech therapy

Lincolnshire NHS has an open referral system for children’s speech therapy.        Parents can phone children’s therapy services to ask about it.       Click icon and look for:

Makaton

Makaton uses signs (gestures) and symbols (pictures) to help people communicate.         Click icon for Signing Hands, the UK Makaton website and have a look under About.

Mr Tumble

  • CBeebies’ series Something Special was designed for children with communication difficulties and uses Makaton.       Click play icon to browse the the themed episodes:  e.g. The looking game.
  • A more selective array of extended singing videos can be found on iPlayer.

PECS boards

PECS boards provide students with a way to visually associate ideas about their everyday life, and to communicate with their instructors and family.         Click icon for illustrations of their use and How to for a guide to making your own.         The website is USA based.

The girl who thought in pictures

Dr Temple Grandin did not speak until the age of 4.       Doctors did not think she would ever speak but her parents refused to accept it.        With determination, her unusual mind enabled her to improve animal welfare on farms around the world.        Click icon for a video clip introducing the book.       new       See also Amazon.        The book contains an illustrated rhyming tale for children followed by reading matter for parents.

Non-verbal

Even if a child does not develop speech all is not lost.        Click icon to read article.        Its themes are developed in Diversitypress.        There are also one or two similar articles in Whatisitlike?.

Lincolnshire Family services directory has a few entries with a search for non-verbal.      (new)       Linchfield is in the Market Deeping area.

E G Training

E G Training provide speech and language therapy in the East Midlands.         See   website         speech & language          locations – their therapists travel to clients in Lincolnshire.

Flash Cards

Sparklebox offer free resources for parents of children with special educational needs.          Here is the Speech page.        Their terms of use are brief.

Play

Children’s centre staff encourage parents to think beyond the disability:    e.g. Come and play aims to promote independence, confidence and social skills.         It may be good for toddlers with delayed speech.         Little explorers could be another one to consider.          See about
children’s centres in Grantham or Wider area.

Dillan’s Voice

Apple has released a video clip called Dillan’s Voice about a Sixteen year old with autism.        This webpage also has an accompanying video clip called Dylan’s Path.

We have an app for that

TippyTalk’ App for Nonverbal People Turns Pictures Into Text Messages.       See this article about TippyTalk, an alternative to a picture exchange communication system (PECS) board.       As of March 2016 it still seems to be at an early stage of development, though, so will not be available to the public for a while yet.        See also TippyTalk blog.

Social scripts

Your child may be repeating words or phrases constantly – why might that be?        Here is a 10 minute video about the difference between echolalial scripting and social scripting and how they can help.

Discussions

Ambitious about Autism has a lot of on-line discussions about speech development.       See www.ambitiousaboutautism.org.uk
Their Twitter display has a link to the website at the top.       Look for the magnifying glass icon on the site to search.       See also:  GAIN tips.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Education News

Lincolnshire SEND plans

A £50m investment was approved by Lincolnshire County Council for SEND provision some time ago.        Click icon for summary.       It contains a link to a strategy document.        Planned school changes, with dates, are set out in the table right at the bottom.        

County news reported construction getting underway in Dec 2020.        update

Ombudsman complaints

Children with special educational needs and disabilities are increasingly being failed by the system designed to support them, the Local Government and Social Care Ombudsman has found.        The Ombudsman is now upholding nearly 87% of Education, Health and Care (EHC) plan cases.       Click icon for full article.

Educational psychologists

Following a report showing an insufficient number of educational psychologists, £30 million extra for training has been announced.          Click icon to read about it.

SEN crisis

The mother of an autistic son, aged seven, wrote about her fight to get him assessed and placed in a school that could meet his needs.        Click icon to read the article of 26/Oct/2018.

Robot coding

Click icon for a video about a computer coding project that is believed to stimulate children on the spectrum to take an interest in and develop social & communication skills.

Lincolnshire SEND strategy

Lincolnshire County Council is developing a new strategy for special education.           The give it the title:  Building Communities of Specialist Provision for Children and Young People with Special Educational Needs and Disabilities in Lincolnshire.                The Lincolnshire  Parent Carer Forum has dedicated a section of their website specifically to these developments.           Click page icon to find out about it or PDF icon for brief presentation.

Parliament inquiry

The All Party Parliamentary Group on Autism has produced a report.          The Click icon to see the Special Needs Jungle’s (SNJ) take.            The SNJ is a parent led group.            See SEN Information for more about them.

Teenage geek

Autistic teenager creates artificial intelligence but ‘can’t get school place’.              It took Kari Lawler only a week to build her own virtual assistant, which operates on the same lines as Apple’s Siri and Amazon’s Alexa.            It’s incredible when you consider what the large technology companies have spent on producing something not very different to what Kari has managed to achieve in such a short space of time.               Her parents have not yet been able to get a school place for her since she was diagnosed and finished at primary school.

SEND Reforms

  • How are the SEN & Disability reforms of 2014 going?              The picture does not seem to be all bad but there is room for improvement.
  • Updates continue to be added.
  • If you are experiencing difficulties you are not alone and it might be worth looking for helpful details.               For example, one survey revealed that only just over half of pupils with SEND (54%) believed that teachers and other school staff were preparing them well for adult life once they leave school/college or training    Could this perhaps reflect a generalised insecurity felt by pupils as they look ahead to the future? 

Click icon to browse articles about reforms.       See also: What Parents told the government        See also:  Botched job?
FromstatementtoEHCP

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GAIN logo - thumbnail Please be aware that we, at GAIN, are not qualified to give advice.       See: disclaimer.

Preparing for change

Preparing for adulthood

Contact has a series of pages about preparing for adulthood.       Click Icon on the  right to  browse.       new

Here is the Moving on and preparing for adulthood booklet co-produced by Lincolnshire County Council and the Pelican Trust.
It is part of the Promoting Independence Project in response to requests for information from young people with SEND and Parent / Carers.        Click icon on the left to browse.

Dealing with change

The National Autistic Society website has a guide to preparing for big changes in life.       Click icon to browse.      new

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See also  Education  under Schooling problems at the bottom of the page.        For a few life skills college courses see College and University.

Options at age 16

Contact, the family support charity, has produced an introduction to the support and options for education beyond 16.         Click icon to view.        See also:  the facts         handy FAQs

Support up to age 25

There were changes in 2014.        Click icon for an easy reading leaflet about the changes.

Circles of support

Circles of support offers support during a transitional time in the focus person’s life such as a change of school or moving on; by using the support of friends, family, support networks, paid professionals and staff.         A Lincolnshire service.        Click page icon for more information or leaflet preview.

Grades are not everything

A Masters degree graduate feels that her difficulties with social skills was overlooked at school because her grades were good.       Click icon to see what she has to say.

Independence

For an more about developing independence click icon.

 

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Money

Turn 2 us

Turn2us is a national UK charity providing practical help to people who are struggling financially.        Click icon to browse.        Look out for their benefits calculator.

Welfare benefits

Carers FIRST is the new name for Carers connect.       Click icon for their welfare benefits page.       More broadly, to find out how Carers FIRST fits in with Lincolnshire Carers Service see Families.

Contact has several pages about benefits.        The Disability Living Allowance (DLA) page may be the most interesting but there are others listed in the left margin too.      new

Official information

UK government website has:  DLA for children    new        Lincolnshire Family Services Directory has:  DLA+&+PIP+for+youth         Money-Advice

Also, for information about Carers Allowance see:  NHS        Government.

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See also Money 16+

Personal Budget

If a child or young person has an Education, Health and Care (EHC) Plan, or who has been assessed as needing an EHC plan, then a personal SEND budget can be requested.       Click icon for the Lincolnshire outline.        It contains links to a number of relevant articles.

Here are some frequently asked questions – see FAQ.

Housing

Housing benefits or Council tax support may be available if someone in your household is on a low income.        Click icon for specifics.

Money Matters

This is a guide for parents of disabled children who want to know what financial help may be available to them and what arrangements they may need to make to manage their children’s finances from birth and as they get older.

Family Fund

They provide grants to low-income families with disabled children.           Fill in their application form and post it to their office in York.           For more information click on the icon below.Family fund logoA representative attended a Lincolnshire Parent Carer Council coffee morning in Grantham, in 2012, to promote the scheme.

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Behaviour

Tips

Contact has produced some tips for managing behaviour that challenges.      Click icon, on the left to view.       See also their introduction to challenging behaviour.        new

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See Schools about Springwell Alternative Academy and Pilgrim School.

Challenging Behaviour Foundation

Doc iconThe Challenging Behaviour Foundation offers information and guidance to families & carers who have a relative with severe learning disabilities who display challenging behaviour.           They provide information sheets about understanding and finding the causes of challenging behaviour and a third about what they call Positive behaviour support plans.         Click page icon above for menu of information sheets and DVDs.        Click phone icon to find out about their phone and email service.         To find more of their resources click on:   Home      FAQs       Families       Information packs       All their resources.

Doc iconNational Autistic Society

Click on the icon for the National Autistic Society’s range of pages covering issues linked to behaviour.        They offer practical information and talk about causes.

NICE flowchart

The National Institute for Clinical Excellence (NICE) has produced a simple flowchart for addressing behaviours that challenge in under 19s with autism.        Click icon to view.        Their guidance is much more detailed.

OCD

Options group have produced a help sheet about Obsessive Compulsive Dissorder and Autism.
Click icon to view.        See also stimming.

What a meltdown feels like

Fifteen people on the Autism Spectrum describe what a meltdown feels like.               For example,  It literally feels like my head is imploding.       Building up to it gets overwhelming, but an actual meltdown is just like … like your brain is ceasing to exist.

Doc iconThanks ‘cool guy’

Here is a story by a father about a plane journey one which a fellow passenger realized his son has autism.        Click icon to view.

Doc iconTips for calming things down

Here is a well presented guide to handling meltdowns.        It offers 7 tips that seem to provide useful insights and may be worth a look.        Click icon to view.

fb-meltdownThe voice of experience

Two autism mums have written in detail about how they experience their children’s meltdowns and what they think may be worth considering in order to help.        See:  The truth about my child’s meltdowns       What a meltdown feels like.

Positive Behaviour support

This help sheet from Options Group introduces an approach that aims to work with the grain of the individual’s nature.          Instead of focusing on reactive consequences and sanctions to try and force change, perhaps a bit like the Wind, we try and ‘proactively’ create the conditions that allow individuals to change in a way that is meaningful for them, a bit like the Sun.

Doc iconAutism & the law

Young people on the autistic spectrum may sometimes get into scrapes with the law.       This National Autistic Society page about encounters with the law may be helpful for parents of young people.        Click icon to view.

Here is a detailed but readable article aiming to help the reader to understand better the relationship between Asperger’s syndrome & criminal behaviour.       They touch on a few recommendations to improve things towards the end of the article:

  • Identify the needs of the young person
  • Identify triggers for behaviour that might get them into trouble
  • Social stories may help young people to understand the issues
  • Actions and reactions can be misunderstood by police etc.

An ID card could help to reduce misunderstanding.         Canadda, based in Lincoln, can provide ID cards to young people in the Grantham area.        See Neuro-diversity ID cards.         See also More information under the Awareness cards heading.

Wider area

There is a range of services that might be worth a look.

“If it feels like challenging behaviour it is challenging behaviour”.      “You do what you have to do to get through the day.
It’s not giving in, it’s coping.” 
    Geoff Evans – he works for Options Group

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GAIN logo - thumbnail Please be aware that we, at GAIN, are not qualified to give advice.                     See: disclaimer.