Category Archives: All

Speech and language

The girl who thought in pictures

Dr Temple Grandin did not speak until the age of 4.       Doctors did not think she would ever speak but her parents refused to accept it.        With determination, her unusual mind enabled her to improve animal welfare on farms around the world.        Click icon for a video clip introducing the book.       new       See also Amazon.        The book contains an illustrated rhyming tale for children followed by reading matter for parents.

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Where to start?

Talking Point offers a comprehensive guide to children’s communication issues.         Click icon for guidance and choose from the menu list down the left hand side.         It may be a good place to start.         You might want to look for the following:

  • Ages and stages of development – what is normal?
  • Some children struggle– what to look out for.
  • What can I do?      Finding the right school.

Talking Point provides services in Lincolnshire.

What to try?

  • The National Autistic Society (NAS) has a guide to visual supports.
  • This retail site has an introduction to using PECS and British Sign Language (BSL)          See also PECS boards below.
  • Here are some parent’s opinions about which to use and this discussion goes into a bit more detail.

Total communication

Options group have produced a helpsheet about the development of communication skills in people on the autism spectrum.         The author is a specialist speech and language therapist.          Click icon to view.

NHS speech therapy

Lincolnshire NHS has an open referral system for children’s speech therapy.        Parents can phone children’s therapy services to ask about it.       Click icon and look for:

Makaton

Makaton uses signs (gestures) and symbols (pictures) to help people communicate.         Click icon for Signing Hands, the UK Makaton website and have a look under About.

Mr Tumble

  • CBeebies’ series Something Special was designed for children with communication difficulties and uses Makaton.       Click play icon to browse the the themed episodes:  e.g. The looking game.
  • A more selective array of extended singing videos can be found on iPlayer.

PECS boards

PECS boards provide students with a way to visually associate ideas about their everyday life, and to communicate with their instructors and family.         Click icon for illustrations of their use and How to for a guide to making your own.         The website is USA based.

Non-verbal

Even if a child does not develop speech all is not lost.        Click icon to read article.        Its themes are developed in Diversitypress.        There are also one or two similar articles in Whatisitlike?.

Lincolnshire Family services directory has a few entries with a search for non-verbal.      (new)       Linchfield is in the Market Deeping area.

E G Training

E G Training provide speech and language therapy in the East Midlands.         See   website         speech & language          locations – their therapists travel to clients in Lincolnshire.

Flash Cards

Sparklebox offer free resources for parents of children with special educational needs.          Here is the Speech page.        Their terms of use are brief.

Play

Children’s centre staff encourage parents to think beyond the disability:    e.g. Come and play aims to promote independence, confidence and social skills.         It may be good for toddlers with delayed speech.         Little explorers could be another one to consider.          See about
children’s centres in Grantham or Wider area.

Dillan’s Voice

Apple has released a video clip called Dillan’s Voice about a Sixteen year old with autism.        This webpage also has an accompanying video clip called Dylan’s Path.

We have an app for that

TippyTalk’ App for Nonverbal People Turns Pictures Into Text Messages.       See this article about TippyTalk, an alternative to a picture exchange communication system (PECS) board.       As of March 2016 it still seems to be at an early stage of development, though, so will not be available to the public for a while yet.        See also TippyTalk blog.

Social scripts

Your child may be repeating words or phrases constantly – why might that be?        Here is a 10 minute video about the difference between echolalial scripting and social scripting and how they can help.

Discussions

Ambitious about Autism has a lot of on-line discussions about speech development.       See www.ambitiousaboutautism.org.uk
Their Twitter display has a link to the website at the top.       Look for the magnifying glass icon on the site to search.       See also:  GAIN tips.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Have you seen

Hannah Gadsby

Hannah Gadsby is an Australian comedian who talks about her autism in her act.       Click play button for a video clip about a classroom experience.        See also: Wikipedia

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Muppet

Triumph of the nerds

This is the story of how Bill Gates, Steve Jobs and their mates changed the world of computers during the 1970’s and 80’s.       Also, how did the IBM PC come to be cloned?        Click play icons to watch the video of the TV series.        Click the page icon to read about what really happened when Steve Jobs visited Xerox PARC.

Part 1             Part 2  

Surprisingly complicated

This is a comedy series shot on Staten Island, USA.        It is based on a mum’s experience of bringing up twin boys who have autism.        Click icon for the back story and a video preview.       Watch:  Episode 1      Episode 2.      See also their Facebook page.

If you spend time on Facebook regularly you might be able to save quite a bit of broadband usage – see our Using Facebook page.       If you are not sure about the PAL DVD format see viewing options.

Autism Rocks

Meet the boys from UK’s premier autistic rock group The AutistiX.

See:  video        website

Chasing Shadows

How does someone with Asperger’s fare in the workplace?       This drama was shown on ITV in September 2014.       It might give you some idea.

It is a gritty drama about a maverick who starts work at a missing person’s unit.        You can view a trailer and a free rough and ready Youtube version of episode one.        See Youtube right margin for other episodes.       There is also a DVD version.

Holby City

Have you noticed the character Jason Haynes in the TV hospital drama series Holby City?        The National Autistic Society has been actively working with researchers, producers and writers.       Jason was introduced into the story line via his aunt Serena.  

The actor who plays Jason has a unique insight into what makes Jason Haynes such a special character, as he himself is a young man with Asperger’s.        See article.        In an interview he also highlights employment issues for people on the spectrum.

Atypical

Netflix has given a straight-to-series order to “Atypical,” a dark comedy about a family with an autistic son, set to star Jennifer Jason LeighVariety has confirmed.       “Atypical” landed an eight-episode order for the first season of the coming-of-age story that follows an 18-year-old with autism and his search for love and independence.       See  Intoduction about Atypical.       See also  viewing options  about Netflix.

Me and my Asperger’sFacbook small icon

A personal blog from Lincolnshire.      Life in a strange world.    Me!    They call me odd, huh.    Anyway welcome to my page.     Feel free to post comments, share your thoughts and/or page.”       Click icon to browse:

Temple Grandin

Here is a film dramatising the life story of a lady with high-functioning Asperger’s syndrome who made an academic career for herself.        She has an unusual name, Temple Grandin.        Click icon for preview.

For the complete film, see Amazon Video and click the More Purchase Options link.      Then, unless you have a high-definition display chose the Buy Movie SD option.

An oral history

Here is a brief animated video of a talk about her own development as a person with Asperger’s Syndrome that Temple Grandin gave at Colorado State University in 2008.      Click play button to watch.

The Girl Who Thought in Pictures

See also Speech & language for The Girl Who Thought in Pictures, an illustrated story book about Temple Grandin.

Doc Martin

This has proved a popular TV drama, with repeats showing on ITV1 or ITV3.      The signs of Asperger’s in the character of Dr Martin Ellingham are hard to miss.       They are outlined and analysed on this blogspot and you can see them illustrated with a video clip from the TV series.

Opinions differ, though, as in discussion 1 and more so in discussion 2.        According to the series author, he was supposed to have the condition but to work on changing himself for the sake of his relationship with his wife and young son.         Also, the scripts are written for entertainment, so things will not be entirely realistic.

Roy Cropper

Have you seen Roy Cropper on Coronation Street?

He feels at home with trains, particularly steam engines from times past.   After Hayley’s passing, Stephen found him at a museum, where he showed an encyclopaedic knowledge of the early steam engines on display.

Since his return to his flat, his friends have found him shut away with his model railway.        It obviously means a great deal to him.

The Wikia page for the Coronation Street character describes him as, remarkably intelligent, but socially naive.    The page also suggests that Roy has Asperger’s syndrome.      This has not stopped him from making a go of his life, though.

The actor who plays Roy is married to an additional needs teacher and she suggested giving Roy Asperger’s.     Doing so transformed him into a character with long term potential.

His life with Hayley has been an enduring and popular feature of the street.      Click on  slide show  for a quick review of their story.      On the slide show page, click on the row of miniature pictures of the couple under the large picture.      Left and right arrows will appear to scroll to more pictures.

Roy’s people skills are actually quite good in some respects.      He and Hayley earned Fiz Brown’s appreciation having  fostered  her.     He acted as a  mentor  to Fiz’s brother Chesney.     Anna Windass, who works in his cafe, also gets on well with him.      Recently she confided in him that she was carrying a secret that she felt unable to share with anyone and he advised her that it would eat her up if she did not tell her boyfriend, Owen.

Home Education

Doc iconFormal guidance

Elective home education is the official name.        Click the icon on the left for the information and resources Lincolnshire County Council publishes.       It provides a step by step guide as follows:             updated

The UK government also produces guidance about home education.       These set out a parents rights and responsibilities. 

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What does home education mean?        Who is responsible for what?       See:  FAQ on Home Education Special website for quick and clear answers for the UK.

Doc iconTaking over the responsibility can be an attractive option for some parents, but is it for you?

  • To read about parent’s experiences  click icon.       A net mums search on home schooling should get a good list of results.
  • The Family Education website offers guidance and some basic resources:   Pros       Cons        Guidance & resources        It is part of the  Family Education Network based in Boston, USA and linked to Pearson Education, Inc.

Inspiration

This outnumbered mamma is a homeschooling mum’s web site from the USA.      Her inspiration page offers tips in a pleasant style with the human touch.

Links to browse

  • Tips – A fairly common sense checklist if you are an autism parent.         See also: ideas.
  • ELL – Addressing special educational needs where English is a second language for pupils

Networking

  • Home Education Network points visitors to resources in their part of the UK.
    For the East Midlands see:   Home         Local Groups                    Notice the tabs along the top:  Home, Advice, Local Groups, Useful Links.
    For the UK see Index and choose your region of the country.
  • Education Otherwise is another source of information in the UK.
    For the Lincolnshire login to Facebook to see:  Homeschool Lincolnshire search results.
    For other counties and regions see sidebar to navigate site.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Coronavirus – return to school …

Return to school

Lincolnshire Parent Carer Forum seem to do quite a bit of what you might call heavy lifting.        Click icon to see their Coronavirus articles on the right hand side.        Notably, a ministerial SEND letter, of Jun 2020, about plans for the return to school.

Latest plans

The National Autistic Society set out government guidance, 7 Jul, about returning to school for pupils with SEN.       Topics include:

  • Autistic children who go to mainstream schools
  • Children who attend special schools and colleges
  • Will children be expected to return to school full-time?

Click icon for article.       Here are their Education updates.

Locally

Harrowby Infant School and National Junior School, in Grantham, were not expected to re-open on 1st June.       See also:  update        Bluecoat Primary         Families not to be fined

The world has turned upside down

Ambitious about Autism has published a children’s story, The world has turned upside down.        Find a link to it on their Twitter feed or their website:

https://www.ambitiousaboutautism.org.uk/

Also, on their website, find:  Home > About autism > Coronavirus
– The Coronavirus resources page has some easy reading downloads.
– The Learning from home page has quite a few handy links with practical resources.       Look for it in Corona > Education.        See also GAIN’s Home education page for a broader picture.

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Resources and updates

National Autistic Society has collected together resources and news about Coronavirus.        Click icon to browse.        Also:

  • Here is an NHS fact sheet about Coronavirus for kids.
  • The Association for Child and Adolescent Mental Health has produced a podcast featuring two clinical psychologists about getting children with autism through this time of upheaval.
  • The Challenging Behaviour Foundation has its own Covid-19 information and resources page.       It includes information about legal rights.        They have some ideas to help to make hand washing fun.

Government FAQ

Click icon for the Cabinet Office updated do’s and don’ts.      You are now able to: exercise outdoors as often as you wish – following social distancing guidelines.        See also complete Guidance and support

SKDC has launched its Covid community information hub:

  • Phone: 01476 406177 / 406358 : 8am – 7pm
  • Email:  SKCommunityHub@southkesteven.gov.uk

Scams

With current Coronavirus restrictions it seems wise to be aware that criminals have been seeking to exploit increased dependence on the internet.      This BBC article highlights efforts in the UK to combat on-line scams.       Click icon to view.       Here are a few pointers for safeguarding yourself.

Social story

Here is a social story about seeing people with face masks.        Click icon to take a look.       If it is not just what you want, does it give you any ideas?       See also: how to write your own         free images .

Health

The NHS continues to update its Coronavirus page.        It is straight forward to browse.        Click icon to view.

Lincolnshire heritage & culture

Lincolnshire County Council have a number of short stories from long ago, produced by Lincoln Castle, on Youtube.       Click play button to see the list.

Lincoln Castle have also published a free audio guide download to the castle.       Click download to scan QR code with your Android or iPhone.

Virtual coffee mornings

Shine, the mental health support network in Lincolnshire, are putting on virtual coffee mornings for carers in Lincolnshire.      They are regularly on Mon, Wed & Fri on Zoom.       They offer support for learning disability as well as mental health.        Click icon for details about the latest events.        See also:  How they work        Shine basics

Supermarket opening

When are supermarkets open during the Coronavirus outbreak?       When are only NHS and vulnerable shoppers allowed in?        Click icon for an outline.

Key terms

Here is a table of school years and ages:

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.        See disclaimer.

More information

Lincolnshire Autism Partnership

The LAPB is designed to try and improve support for autistic people.        Have your say.      Click icon for more information.       See also history        Email:  Autism.Partnership@lincolnshire.gov.uk        They launched a monthly newsletter Autism Lincs early 2017.       See Issue 1 and click Past Issues at top left of screen to find all issues.       updated

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For key websites see Information.

GP register

NICE is recommending that GPs in England keep a register of patients with autism in order to improve the care they receive.       The guidance from NICE needs to be accepted by NHS England before it is put into practice in GP surgeries in England.        See also NICE.

For those worried about data security see Should people register?        The information is stored at the NHS data centre and can only be seen with permission.        People have to explain why they need your information and what they plan to do with it.       This means that agencies such as social services, schools etc should not have access to this information.

Carers UK

Carers UK is a charity which works to help carers by providing information, advice, support and by campaigning for change.        Click icon for their website.

  • They offer a wide range of Help & advice  including information on the range of financial support that is available to carers through the benefit system.
  • For information about Carer Support specifically for carers of children under 18 and young carers see Carer Assessments.
  • For more detaied information see resources.        Having the right information at the right time can make a huge difference for the carer and the person they care for.
  • Have a look at Talk to us about their Advice line including advice line hours:     0808 808 777.

For information specifically for carers of adults see adult Care & Support.

Family Court

If you need legal support for a case about your child, maybe to do with care or adoption, you may want to know about CAFCAS.        It stands for Children and Family Court Advisory and Support Service.      Their website offers information for Children and Teenagers as well as Grown ups.

Here are some Top tips for dealing with CAFCAS from Net Mums.        Also, it might also be worth bearing in mind that the people at CAFCAS may not know how to deal with a child on the autistic spectrum.       This link to the National Autistic Society web page  About autism  could be useful if you wanted to print off some explanations that might help them to understand your child.

Things seem to have Improved according to Ofsted since 2008, when they found Progress inadequate, though their 2014 report also points to
areas where there is room for improvement.       The Guardian reported on apparent Success in 2012 of a management initiative to make the “health and wellbeing of social workers a priority in the workplace”, which, the Guardian said, includes CAFCAS .        So there seems to be some good news.

Cereba

This UK based website offers a wealth of information.        It is a national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support.        Click icon for their website.       They have a Help & Info page.         Topics include AnxietyMoneySchool Transport and Research among many others.

They also produce a toolkit that aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of healthsocial care and education support services.       It was developed at Cardiff Law School.       Click icon to view.

Learning Disability Partnership

The Lincolnshire Learning Disability Partnership Board aims to make sure that different people, organisations and agencies work together to improve the lives of people with learning disabilities.        Board members include: people with a learning disability, parents and carers.

Click icon for more about them.        Email:  Marie.osullivan@voiceability.org         01522 706 580       This group is quite separate from the Lincolnshire Autism Partnership.

Awareness cards

Stickman Communications produces a range of colourful awareness cards.       See range of cards         Prices are in £, as with the NAS below.

The National Autistic Society (NAS) also produces an autism alert card that could be useful in public spaces, like a supermarket:  single plastic wallet with card to keep inside and a key facts leaflet.       See also photos of what looks like the same thing

Display Cards

Here are a few free resources.       Printable sheets:  Display cards        Status cards        No touching
How to use the cards:  guide

Different not less

Steve Silberman puts some flesh on the bones of this slogan with hard-headed analysis and vision.       Click icon to view article.        It has a 14 minute video at the bottom of the page that explains his thinking.

Asperger’s Syndrome

The Asperger”s Syndrome Foundation offers quite a bit of insight:   What is Asperger’s Syndrome?         Information sheets

Dealing with stress & panic attacks

It would be nice to get to the root cause of difficulties, but it may often be a case of finding ways to cope with the effects.       Here are are a couple of fact sheets that might be worth a look:

Stress and autism spectrum disorders          Panic attacks and autism spectrum disorders

NHS Dentists

Click icon for a Healthwatch Lincolnshire statement about difficulties getting an NHS Dentist in Spalding after a meeting on 31st October 2017.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

On a mobile phone

Site introduction

Click icon for an introduction to this site.    new       See also:  Menu guide

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Perhaps the one thing you need to know about browsing the GAIN website on a mobile phone is that the main menu is accessed by tapping the three bar icon at the top of the display.       It is circled in red on the screen print below.

Using the menu

The GAIN website menu system when on a mobile phone may be a bit unusual, so this page walks you through an example of its use.        (updated below)

Tap or click the three bar icon circled above and the menu appears, taking up a large part of the display below.

Notice the X in the top corner.       It  gets you out of the menu system.       But to see how the menu works, tap the down arrow icon circled in red as in the screen print above.        A number of new menu items appear under Families, as shown below.

Tap Education and learning.       The menu disappears and the page is displayed as shown below.

Now tap or click the three bar icon at the top of the display to show the menu again to get back to the menu.      Only the top level menu options are now showing.

Tap or click the down arrow next to Families again – circled in red above.       The next level re-appears.      The down arrow has now been replaced by an up arrow – circled in red below.

Now, if you decide that you do not want any of those additional items you can tap or click the up arrow icon next to Families.      Then the extra items under Families disappear, as shown below.

Right menu

If you still have the menu showing, tap the X in the top corner, and you will be back in the main display.

There is another menu icon on the right hand side of the screen.        It is circled in red below:

Tap it and you get the menu shown below:

It offers shortcuts to:

  1. This menu guide for mobile phones,
  2. This site’s event calendars
  3. Links to the eight most recent page updates on this site.       See if you can scroll down to the last one on your phone.

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Almost there

Keran – age 33

Meet Keran Bunker, who has always struggled to keep jobs or a place to live and did not find out he had autism with ADHD until he was-33.         Click play button for his video.

Social skills

The National Autistic Society has set of pages about communication issues with the autistic spectrum.        The page about social isolation and social interaction could be the most relevant.      Click icon to browse.        new        Also:

Relationships

You do not have to look far to see that relationship issues are of concern to all kinds of people.        However, below are a few links offering handy insights into relationships for people with Asperger’s.

    • ArticleRelationship Difficulties Due to Deficits in “Theory of Mind”  
    • ArticleRules of Effective Listening: Tips for Men on the Spectrum
    • Adult relationships – bullet points
    • Issues for partners
    • Radio programme – may well still be available to hear on-line:         Why do so many women think their men have Asperger’s syndrome?

Chat for Adults with Asperger’s

This is a website dedicated to people with Asperger’s.        Contributors tackle many topics.       Look for the Popular Posts as well as other links down the right hand side.       There is also a search box.        Below are some of the more substantial ones.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Teenagers & young people

Social skills

The National Autistic Society has a page about social isolation and social interaction.        Click icon to browse.        new      

The following book might be interesting.           Michelle Garcia Winner & Pamela CrookeSocially Curious and Curiously Social,   A Social Thinking Guidebook for Bright Teens & Young Adult          It contains some cartoon-style illustrations.         It is not currently in Lincolnshire public libraries and, on request, they replied, “Unable to purchase via our supplier, out of print”.        Social Thinking  is the web page that
promotes the book along with a few other related books.       
See also:  Good Reads        Amazon – in stock in 2016.

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The  Adults  and  Employment  pages have a few items that may be of relevance for older teenagers.        See Growing up for sex education DVDs and on-line counselling.

First step to independence

The loving push is a book by best-selling author, autism advocate, and animal science professor Dr. Temple Grandin and psychologist and autism specialist Dr. Debra Moore.       They spell out what steps you can take to restore your child’s hope and motivation, and what you must avoid.

Temple Grandin is not everyone’s cup to tea but she has a big following.       See also  Get your butts out of the house …

Google comes to the rescue

Click icon to read about a teen’s YouTube channel hacked by a bully.         Google came to the rescue.         One of them wrote, I’m so happy we were able to get your videos back.     The teams here at Google can tell you put a lot of time and effort into each and every video.      Always follow your passions and keep up the great work, whether that be in video editing, computer animation, or anything else you choose to pursue. 

What to expect

The Interactive Autistic Network was a research based initiative from 2006 – 2019.       They produced Autism in the Teen Years:  What to Expect, How to Help.       Click icon to browse.      The interactive autism network link autism community and research.        A couple of quotes:

  • The teens are not getting more noncompliant because their autism is getting worse.       It’s because they’re teenagers.
  • Teens say actually the hardest part is not having friends.

Safe living

Parties, Dorms and Social Norms:  A Crash Course in Safe Living for Young Adults on the Autism Spectrum.         “The late teens and twenties are exciting times, but filled with potential pitfalls as young people navigate the transition into independent adult life.”         This book was written by Dr. Lisa Meeks, an Assistant Professor of Medicine and Director of Medical Student Disability Services at The University of California.
See Amazon.

ChildlineTeen couples

Doc iconChildline was Esther Rantzen’s idea.         It has a well presented website where a teenager or young person can browse and see what others are saying or asking.        Click icon to view.

The website has a page about Autism.         More specifically, it has several pages which provide an introduction to issues that could be of help and interest to teenagers:

Peer pressure            Relationships             Sexting              Zipit

Sarcasm

Do you get sarcasm?        You might like to try Sarcasm is strong with this one on Facebook.

Doc iconExperiences

Read about parents whose older children and teenagers have either autism or Asperger’s.

Guidance for parents

This booklet offers practical guidance for parents and carers of teenagers with Asperger’s Syndrome.    

Relationships

Options Group produce help sheets on relationships, developing sexuality and sexual expression.         To view them click

Part 1                   Part 2 

Also. the National Autistic Society has a page about sex education and puberty:Doc icon

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Contact us

01476 600074 – GAIN phone number since May 2020.      The following might be good times to phone GAIN:
Mon – Fri:  10am – 12pm,    1:30 – 2:30pm,    3:30 – 5pm.
If you do not get through we will get back to you.        Alternatively:

  • Email:  mailus@gain-grantham.co.uk
  • Meet up at Coffee mornings
  • GAIN, c/o Belton Lane Children & Community Centre,  Off Princess Drive,  Grantham,  Lincolnshire,  NG31 9PP.
    Use NG31 9QB for satnav.
    See Our base for more information.

We are located in England, which is part of the United Kingdom (UK) of Great Britain and Northern Ireland.

Helpline

The sheer number of websites about autism and autistic issues can be overwhelming.      They may also cover an extensive range of aspects.

  • Contact us by phone or email.       We should be able to point you to a few websites or specific pages that might be of help.       It may also be a good time for some new GAIN research.       Another point of view can sometimes be useful.
  • For helplines with more to offer see:  Families        SEN/EHC Support –  Education

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.         See disclaimer.

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Money (16+)

Housing

Housing benefits or Council tax support may be available if someone in your household is on a low income.        Click icon for specifics.

Transition at age 18

At  age 18 social care support transfers from Children’s Services to Adult Social Care.        Click icon to start the assessment process and arrange personal budgets.

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See Support for carers about Carer’s Allowance for carers of adults.

Benefits

The National Autistic Society has a range of pages about  autism-related benefits.       Click icon to view       They include:

  • Employment & Support Allowance
  • Benefits for young autistic people
  • Benefits for autistic adults

Carers FIRST is the new name for Carers connect.        Click icon for their welfare benefits page.        More broadly, to find out what Carers FIRST has to offer and how it fits in with Lincolnshire Carers Service see Families.

Official information

Lincolnshire County Council publish information on benefits and finance in their Family Services Directory.       PIP-for-ages-16—64  – see also below.         Money-Advice

Benefits news

  • Inquiry into disability benefits, led by Frank Field, ‘deluged’ by tales of despair.           Several themes emerge from the testimony heard by the work and pensions committee.           See article.
  • Exemption from re-assessment for Employment & Support Allowance (ESA) is not as expected.            People with life-long or severe disability will only be exempt if they are deemed to be unfit for ‘work-related activity’.              See article.
  • Get the latest on the benefits system.             See Disability news            e.g. Call for action

Personal Independence Payment (PIP)

This is the replacement for DLA for people aged 16-65 with a disability or long term health problem.       It has been in the process of being phased in since 2013.

  • Citizens Advice offer a large number of pages about PIP, all neatly arranged to make it easy to find your way around.
  • The National Autistic Society (NAS) has published an series of pages on the new benefit.      They also have a list of related pages.
  • If you want to see what the government has to say about it, you can choose from Overview,  Detail and News.

Universal credit

Contact has produced a page about Universal Credit.        Click icon on the left to view.       They have also launched a campaign about Universal Credit called Counting the cost.        The aim is to stop the cut in benefits for disabled children it represents.

They also have a helpline – with four ways to get in touch:                     

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GAIN logo - thumbnail Please be aware that we, at GAIN, are not qualified to give advice.                     See: disclaimer.