Category Archives: All

Care & Support

Support in the community

Thera Trust provide support at home, at work and in the community for adults with a learning disability.        They charge for their services, though they also explain how a Personal Budget from the local authority might make Thera an option.         Their nearest office is in Swingbridge Road, Grantham.        For more about Thera click icon on the left.        See also Adult social care above.

Also, the National Autistic Society has a page about Brain in Hand offers access to personalised support from an app on your phone.         It has features to help you remember activities, reduce anxiety and feel supported.         For more about the app click icon on the right.        (new)

Adult social care

Click icon on the left for the Adult care services pages on Lincolnshire County Council website.        It includes a page on Adult care assessment, personal budgets and more.        See also Money under Benefits & care.

Click icon on the right for a list of pages about Adult social care in Lincolnshire Family Services Directory.        You may be able to narrow down the search using fields along top and down left hand margin.

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This page is about care and support for adults on the spectrum in the general Grantham area.        For care & support for adults in the wider area see:  Activities       Specialist services       See also Money.

Love, sex & relationships

Brandon Trust supports people with learning disability in other parts of the country.       They have developed new policy, guidance, and training around relationships, sex, and sexuality.       Click icon to read about it.        It might be worth a look for anyone interested in the issues.

Thera Trust provides services in the Grantham area – scroll up to Support in the community to find out about Thera.        They have a page called Making friendships.       They can act as facilitators for their service users.

NHS services

Lincolnshire Partnership NHS Foundation Trust offers a range of services to support adults with learning disabilities in the community.         These services are specifically geared up for adults whose learning disability prevents them from accessing mainstream services.         Click icon for details.        See links to specific services at the bottom of the page.

Lincolnshire NHS website also has some handy links:  Learning disabilities servieces         Access –  for mental health & learning disability services.        Advice & liason

Life-long care

Here is a guide to securing life-long accommodations for adult children with special needs from a blogger in the USA.             If offers general guidance.

Residential care

  • A new specialist residential care home for adults in Dorrington, near Sleaford, was built by a family firm set up in response to their own experiences.                 It is called The Reeds opened in September 2016.                See:  news          Home From Home.
  • Autism Care provides residential settings for adults.           They offer two types of service, supported living and outreach.           Their nearest setting to Grantham is Heath Farm in the village of Scopwick, between Lincoln and Sleaford.            It has several small units, which enables them to cater for a range of needs on the spectrum.             See the Heath Farm brochure.
  • The Shires runs two small residential settings for adults with autism and learning difficulties, called Milfield House in Colsterworth and Stowe Court in Stretton, further south along the A1 – see the Shires brochure.

Community based support

Adults Supporting Adults (ASA) offer paid-for support, open to autistic clients.        Click icon to browse their website.

  • Day Time Provision 1 to 1 support in the community with focus on maintaining and developing independence and social skills.
    Look for Sit2Gether and Shop2Gether on website coloured side bar.
  • Extended Stay the client is carefully matched to live with a family and share their home and community life.
  • Respite Resource – a short break with a carefully matched family.

Circles of support

The service will help you plan for the future.      They can help you and your family to look at who is there to support you to achieve your plan.       They can help you to plan how you would attend an activity for example or how you could have more opportunities to see your friends.         A Lincolnshire service.         Click page icon for more information or image preview.

Autism sign language

An autism mum has created a Facebook blog about her stories and method, supporting her non-verbal son.          Click icon to browse.            See also:  How it began          Speech and language

Professional obligation

The NHS has produced a helpsheet for making decisions about healthcare treatment.        Click icon to view.

Special clothing

Adults with autism often have sensory issues.    They may be fussy about the clothes they wear, for example.     Hear is a list of some of the suppliers of specialist clothing .

Some people with autism may engage in fecal smearing.      Click on this  forum  to see whether mothers’ experience with children helps.        Hear is a list of some of the supplier sites of specialist body suits.

Toileting

Bladder and Bowel is a UK Disability Living support group for promoting continence and product awareness.         Their helpline is  0161 607 8219, a Manchester number.         Click also for email address.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

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Lincoln activities

Lincoln Castle

Lincoln Castle’s early morning explorers sessions are an exclusive hour for children with autism and their families.        Enjoy selected mainstream events every other month in calmer circumstances.       Click icon for more information.

See Related calendar for specific exclusive session dates.       Look for Castle.

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Farm park

Rand Farm Park offers family days out on a working farm.        It is located near Rand, LN8 5NJ, a small village between Lincoln and Horncastle.        They say that they are autism-friendly and often host private events for PAACT and the Lincolnshire Downs Syndrome Support Group over the summer.        See map          farm layout

Trampoline park

Jump Inc trampoline & inflatable park is on Dixon Close off Tritton Road, Lincoln, LN6 7UB.        Click icon for more information.

Activity days

KIDS Lincoln activity days during school holidays for young people aged 8-19.        Click icon for more information.

Making Noise

Lincoln Making Noise is at St Francis School, Lincoln, LN1 3TJ.        1st and 3rd Saturdays of the month: 11.00 – 12:00 and 12:00 – 13:00.           Click icon for an introduction.       See also Website

Tiptoe Theatre Company

Tiptoe Theatre Company:  for ages 8 – 14.        Monday 5:30 – 7pm, term time at Drill Hall, Lincoln,        This is an inclusive drama group which aims to use the benefits of drama and theatre to enrich the lives of those with disabilities.         Run by Leanne Twidale.        See map.

Fun Farm

North Hykeham play centre, Fun Farm, an indoor Lincoln play park, installed a £35k ‘underwater’ fun station.        See: 2016 upgrade         map

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Coffee – 20 May

Come and join us for coffee a chat.       We have an autism mum hosting our coffee mornings, usually accompanied by another autism mum or dad.       They would be delighted to meet you.      We offer both information and emotional support.

This coffee morning will be on Monday 20th May at the Belton Lane Children’s Centre,  Grantham.       Drop by any time from 10am – 12pm.       If you are using satnav, NG31 9QB should get you to the correct entrance.

Click icon for more about this event and to log your interest.

Technical

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You can leave comments on our Facebook or Twitter  pages.        See Contact us for our email address.

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  • As a matter of interest, while Windows is the most popular operating system Linux is quite popular amongst our visitors too.      Please be aware that trying out a version of Linux is technically ambitious, though.      This how to guide might give a rough idea of what is involved, however.
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PDF files

When you click the icon show on the left, the text may sometimes appear uneven, as shown on the right.          Simply click the  +  icon at the top of the display once or twice and it should become much more readable.

Attribution:   Icon by Ethandcltd – Own work, CC BY-SA 4.0,
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Golf – Carlton Scroop – 28 May

GAIN are proud to announce an Autism Friendly Golf Session at Sudbrook Moor Golf ClubCarlton ScroopNG32 3AT, Tuesday 28th May, 10:30 – 11:30am.
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Places for 6 children age 7+.       Tuition & suitable clubs provided.       Sturdy shoes required.         £2 per child.           See map.           Click icon for more information & to book child places.

Tennis – 28 May

Next autism friendly tennis session at Grantham Tennis Club, Arnold Field, Gonerby Road, GranthamNG32 3ATTuesday 28th May, 6 – 7pm.
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Fun rather than serious training.        Places for 20 children age 3+.      The session will be indoors.        Tuition & suitable equipment provided.       Sturdyshoes required.         £3 per child.        For more about the session & to book your place click icon.

Interest News – Bourne events …

  • Money for nothing – Dire Straits trubute band in Bourne, 12th Apr 2019.       Bourne CiCLE feltival men’s road race, 1st Sep.
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  • Queen on scheduled train:  This year, 2018, the queen caught a regular rail service to Norfolk for her Christmas break at Sandringham.        See pictures        In 2017 she recreated the first rail journey by a British monarch – Queen Victoria.
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  • Tour de France: 2018:   This year Le Tour takes place Saturday July 7th to Sunday July 29th, ITV4 coverage as last year.          See:  Official guide         ITV guide            Update:   Did you know that one of the teams are using disc brakes on their bikes?
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  • Tour de France: 2017:   This year Le Tour takes place Saturday July 1st to Sunday July 23rd, ITV4 week days: 11am – Highlights followed by live coverage.        7pmHighlights.           Weekend live coverage times vary.
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  • General election, Thursday 8th June 2017 – Easy read manifestos
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  • Tour de France: 2016 coverage:  Stage 7 win.            In the end Chris Froome notched up his third tour win for Britain and the Sky team.           See:  Pictures            Official guide            2015 video           Froome on 2016
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  • New Eurostar trains         Eurostar - Valero e320Eurostar are replacing their original French built train sets with new German Siemens trains.           There are plans to extend services to destinations in the Netherlands and Germany.          “In September 2013, Eurostar announced that its new service between London and Amsterdam, intended to begin operation in December 2016, would be operated by the trains.        The first Class 374 set entered service in November 2015, ahead of the full launch of the new type; the receipt of the safety authorization from the Intergovernmental Commission was received earlier than expected, allowing Eurostar to begin utilizing the type on a small number of services for in-service testing.”.            See Wikipedia for more information.
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  • “Einstein’s gravitational waves ‘seen’ from black holes.”        “Scientists are claiming a stunning discovery in their quest to fully understand gravity.”      See  article  complete with video clip and pictures.            In 1916 Albert Einstein predicted that gravity might be found to work like a kind of wave.           See:  PHD Comics         Wikipedia.
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  • Chris Froome wins the 2015 Tour de France cycle race.          See:  The finish        The day before.           The young Columbian runner up might be one to watch next year.
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  • A NASA space probe sped past Pluto in July 2015.           See: article – with pictures from the probe and illustrations.
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  • Steve Morse joined Deep Purple in 1994, and this recording of Smoke on the Water has a particularly good version of the guitar solo.              In the 1970’s most teenage boys knew the solo, and pretty much most of them with a guitar had a go at playing it.

Employment News

DVLA U-turn

The DVLA has reversed its decision on disclosure for people with autism.       Drivers with autism will only need to disclose diagnosis if their driving is affected.        Click icon for article, dated 5 Mar 2019.

Experts by experience

Have you used NHS services?        Four openings for paid employment for people with learning disabilities in Lincolnshire by the NHS were publicised in 2017.           Click icon to find out about it or have a look at this summary.         Update (2018)     (new)

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Most, but not all, employment news seems to be coming from the USA which may be of some interest in the UK.

28 years of service

An autistic man was told that he wouldn’t last a month in his job, but now he is to retire after 28 years of service.            Shaun Condon, 54, worked for almost three decades as a cleaner at Newport Bus in Wales.

Trail-blazing companies

Read about what these four major companies are doing for autism employment.               See  article.

Fixing appliances

A teenager with Asperger’s in Portland, Oregon has found a friendly supplier of old appliances to get working and sell on.                  See  article.

Building careers

One tech start-up’s quest to build careers for people with autism in California.                See article

Ford is hiring

Ford has announced that it will be launching a pilot programme to hire people on the autistic spectrum.                This is in partnership with Autism Alliance of Michigan.                 See article.

A teenager named Sam

It can be difficult finding employment when you are on the spectrum, but here is an example of a young man who was able to work behind the bar at Starbucks!

Supported work

The fuss over Lord Freud’s comment, in October 2014, that some disabled people are “not worth” the minimum wage may seem worrying for some.        All the main political parties were at pains to state that all disabled people should continue to be paid at least the minimum wage, though, which gives some reassurance.

There is already a wage subsidy scheme for the benefit of a particular group of disabled employees.       This forms part a a broader package of support for people with disabilities.       You may qualify for this support if you are awarded Employment and Support Allowance (ESA).         Here is a page that tells you How to claim ESA.

Mind campaign

Mind, the mental health charity, believe that mainstream Back to Work schemes are inappropriate for people with mental health issues.        If you agree it might be worth giving their Report summary a look.

But does this apply to people on the autistic spectrum?         See Mental health & autism

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Diversity press

Autistic not weird

This is a website by a special needs tutor with Asperger Syndrome.       Click icon on the right to browse.       For example:  Being different       (new)

Be with that

Danny Raede has discovered for himself ways of understanding and coping with the difficulties he experiences as someone on the spectrum.         Be with that may be a handy idea and technique to help to cope when feeling overwhelmed.        Ciick icon to view and watch video.        See also home page.

Amythest Schaber 

Amythest Schaber is an artist, writer, public speaker and advocate.         In her blog called Neuro Wonderful she offers insight into autistic life, put across in her unique style.        Click page icon to see her range of videos.        For example: What is stimming?         What is autistic burnout?     (new)

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This page is dedicated to publications from the viewpoint of people who do not fit in with today’s prevailing norms, notably Asperger’s Syndrome – and those close to them.

Adults’ experiences

What is it really like to be an autistic adult?          Professor Ian Walker shares his story.          He is a retired university lecturer who was only diagnosed with autism at the age of 71.          Click icon to see article and video clip.          Find more interviews from the series at the bottom of the ITV page.

Why advertising falls flat

This article considers the possibility that people with autism might be savvier consumers.          Click icon to see article.

Autistic Allies

This is a discussion group for members.        They stress that it  is NOT a support group.      Their goal is to eradicate stereotypical images of autism, and to promote an autism-positive stance.         Click icon for Facebook group.          You have to join the group to see content.          See also Austism-positive.

NeuroDivergents

Monique Craine is a blogger, activist and campaigner for NeuroDivergent (ND) rights, AKA Human Rights.            She says, This video was inspired by a Powerpoint presentation which I delivered in the past – which people claimed ‘opened their eyes’ to autism.            It has been receiving praise from the autistic community, autism professionals and parents.            Click play button to watch.

Non-speaking / low-functioning?

I am autistic, non-speaking. I am also labeled “low-functioning”.         This label is a pre-judgment based on what I cannot do.          It makes people look at me with pity instead of trying to get to know me, listen to my ideas.

Difference or dissorder?

This article considers issues linked to the social and medical models of autism.

Dr Dan Edmunds

I know that autism is not a disease and not something to be altered, it is a culture and a mode of being, and through my 17 years of journeying with fellow persons in the spectrum I am increasingly convinced that being autistic is a necessary adaptation to a complex world and that there are unique strengths that are a part of autistic culture.       I see many programs to alter autistic persons as discriminatory, for it seeks to exterminate a culture.       If we treated other cultures the way autistic persons are often treated, there would be outrage.        Facbook small iconBut there are powerful forces convincing people that autistic persons are defective.        Maybe one day this will change, I strive for it.        Dan L. Edmunds                   Click Facebook icon to browse his blog.

Steve Silberman

Steve Silberman is an award-winning science writer and has a lot to say about autism.              For example, Two further developments, thinks Silberman, make life much brighter for people with autism today.         One is social media: “In face-to-face, real-time interactions, people on the spectrum are often overloaded.        Conversation, eye contact, body language, all the little social signals – that can get too much.        Whereas, on the computer, at their own pace, it’s often much more natural to them.”              See article, The man who wants us to embrace autism,                It explores his views and insights.

See writings and media for more of his work.               He is the author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversitysee Amazon.               See also Profile

Facbook small iconAutonomous Press

Owned by disabled workers, Autonomous Press seeks to revolutionize academic access.                  This can refer to a lot of things, e.g.  access to higher education, inclusive class environments …                     See About for more information.

Neuro-cosmopolitan

This website could be a treasure trove for the gifted academic or teacher.

  • Here is one of the author’s more accessible articles: Advice to Young Autistics I did learn to navigate the neurotypical social world. But I didn’t approach that task with the intention of trying to change myself in order to “fit in.” I approached it as an adventure in learning my way around an exotic foreign culture.
  • This could be a good starting point for further reading: Neuro-what?

OutlookBe awesome

These links are all from the Ollibean website.                 If you are always questioning things, maybe a bit of a non-conformist, this site could be a useful starting point.

  • Attitudes  –  We need to start to change how non-disabled people see disabled people, and then we can begin demanding a change in attitude.           We have enough true allies to join and support us, and we can demand what we decide we need to live a fulfilling human life.
  • Be awesome   –  Ableism – discrimination against disabled people, often unconscious/implicit.         Ableism brought forth by pity is frustrating.           It gets in the way of possibilities.
  • Universal design  –  When more people participate, everyone wins because human beings learn from each other –   e.g.  Captioned videos, films and TV help with literacy, including literacy of non-disabled people.
  • False choices  –  e.g.  Is autism a disability or a difference?

Asperger United

This is a magazine aimed at adults with Asperger’s Syndrome.             It is published by the National Autistic Society.                Click link below for more information.

AspUtd logo

Original and tribal minds

What started out as an explanation for autistic behaviour has with twelve years of obsessive thought become the basis for a profound shift in thinking about psychology.              See introduction.

Key words

Ableism:  quick          detail
Autism-positive:       article
Aspie:                description
Diversity press:  just the title of this page
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Growing up

Lindum counselling

Lindum Counselling and Lindum Listening Ears, based in Lincoln, offer a free counselling service for children from the age of 7 and adults.        Click icon for more information.

Healthy Identity

One of the clinical psychologists at Options Group has produced a helpsheet called, Supporting your child in developing a healthy identity.       It sets out the challenges that a diagnosis of autism may pose and the kinds of support that may help.      Click icon to view the helpsheet.

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Children on the autistic spectrum develop their own ways of thinking and coping with life.         Chose an age range for some resources that might help parents in supporting their children’s development.

                       

Kooth on-line support

Kooth is an online counselling and support service for young people aged 11-18  (up to 25 for Care Leavers or young people with SEND).          It is staffed by  qualified counsellors and is free across the Lincolnshire area.         See:  Family Services         XenZone – parent company          Research evidence

Life Support DVD’s

This UK based site offers sex education DVD’s.            This one aimed at children with SEN may be of particular interest.              Others are aimed at primary or seconday aged children in mainstream or SEN education.              See also Be safe on-line.

Safety

  • The National Autism Association (USA) website has some pages on safety.             Those on wandering and bullying might be of particular interest.
  • Here are some tips for keeping your child with special needs safe at home.
  • Also, a book by Luke Jackson with the title Freaks, Geeks and Asperger Syndrome has a well written chapter on bullying.           See Library books for more about this book.

Siblings

Siblings, that is brothers and sisters, can be affected by their sibling on the autistic spectrum.

  1. Options Group have produced a handy new guide to supporting siblings.
  2. The National Autistic Society has a range of pages with information about siblings.
  3. It is not all bad news.         See: What my autistic brother has taught me.
  4. NetMums has a discussion about Copy-cat siblings.            Mums talk about a neuro-typical child copying one who is on the autistic spectrum.              They also have a discussion about Explaining autism to a sibling.
  5. Here is a complete article about Explaining Aspergers to a child.

Letting go

One of the hardest parts of being a parent of someone who is very vulnerable is learning how to trust other people to share in the taking care of them.             In my experience, the difference is nearly always entirely down to whether or not the staff member concerned and I, as the family member, have a good relationship, built on mutual trust, respect, acceptance and understanding.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.