Category Archives: Adults

For adults with autism, their parents or carers

Coronavirus resources

Lockdown learning

BBC Bitesize is currently aiming its free online interactive resources at the lockdown situation.       So what is Bitesize and how do you use it?        See About us         Click icon to browse or get started.

Education technology

There is a range of help available to access remote education to those who qualify.       Parents cannot apply directly but need to contact schools to get help.      Click icon to find out more.       For example data allowances for mobile phones.

Tips

The National Autistic Society has produced a range of tips for autistic people and families.        Click icon to browse.

Government guidance

SKDC has launched its Covid community information hub.      Click icon to get the latest for the Grantham area.

  • Phone: 01476 406177 / 406358 : 8am – 7pm
  • Email:  SKCommunityHub@southkesteven.gov.uk

See also  for the UK government’s complete Guidance and support

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Parent to parent

The National Autistic Society has set up a Parent to parent emotional support helpline.       Phone them or fill in an online form to request a phone call.       Click icon to find out more.

Return to school

Parents

The National Autistic Society has set out guidance for parents of children on the autistic spectrum about the return to school in September.       Click icon to view.       See also directive to schools about support of SEND pupils.        new

EHCP

The NAS has also set out answers to questions about the way the return to school in September affects children with an Education, Health and Care Plan.        Click icon to view. 

Lincolnshire Parent Carer Forum seem to do quite a bit of what you might call heavy lifting.        Click icon to see their Coronavirus articles on the right hand side.        Notably, a ministerial SEND letter, of Jun 2020, about plans for the return to school.

Ambitious about autism

On the Ambitious about Autism website, find:  Home > About autism > Coronavirus
– The Coronavirus resources page has some easy reading downloads.
– They have a couple of pages about the return to school.       Look for it in Corona > Education.       new

https://www.ambitiousaboutautism.org.uk/

They have also published a children’s story, The world has turned upside down.        Click icon and scroll down to find it.       There is also a link to their website at the top of the Twitter feed.

Resources and updates

National Autistic Society has collected together resources and news for the current situation.        Click icon to browse.        Also:

  • Here is an NHS fact sheet about Coronavirus for kids.
  • The Association for Child and Adolescent Mental Health has produced a podcast featuring two clinical psychologists about getting children with autism through this time of upheaval.
  • The Challenging Behaviour Foundation has its own Covid-19 information and resources page.       It includes information about legal rights.        They have some ideas to help to make hand washing fun.

Shine

Shine has just put out a newsletter that addresses some issues of current interest.        Click icon to browse.       new

Shine Lincolnshire, the mental health support network, are putting on virtual coffee mornings for carers in Lincolnshire.      They are regularly on Mon, Wed & Fri on Zoom.      See how they work.      Their website has details about all the latest events.

Shine aims to put people with mental health issues in touch with sources of support.       See Shine basics

Emotional wellbeing

There seem to be some new  resources and services developed to support for emotional wellbeing and mental health in Lincolnshire.        Click icon for GAIN guide.

The friendly garden

The Friendly Garden is the location for a range of garden related events organised by the Sage Gardener.       They have made changes to the way they do things to make events COVID safe so that members can make the most of the outdoors and the natural world and feel better.      They are geared up for older people rather than children.        See Mainstream activities to find out more.

Scams

With current Coronavirus restrictions it seems wise to be aware that criminals have been seeking to exploit increased dependence on the internet.      This BBC article highlights efforts in the UK to combat on-line scams.       Click icon to view.       Here are a few pointers for safeguarding yourself.

Social story

Here is a social story about seeing people with face masks.        Click icon to take a look.       If it is not just what you want, does it give you any ideas?       See also: how to write your own         free images

Face coverings

Professor Ellen Townsend makes a plea for compassion for those who cannot wear face coverings.       She outlines the many reasons why some people may not be using a face covering.       Professor Townsend leads research at the School of Psychology, University of Nottingham.
Click icon for article.       See also:  Mask anxiety

Health

The NHS continues to update its Coronavirus page.        It is straight forward to browse.        Click icon to view.

Lincolnshire heritage & culture

Lincolnshire County Council have a number of short stories from long ago, produced by Lincoln Castle, on Youtube.       Click play button to see the list.

Lincoln Castle have also published a free audio guide download to the castle.       Click download to scan QR code with your Android or iPhone.

Key terms

Here is a table of school years and ages:

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.        See disclaimer.

Related Calendar

Virtual workshops

Lincolnshire Parent Carer Forum are arranging two free series of workshops on Zoom.       One is aimed at friends, relatives and carers of children or adults with additional needs.       Dates range from 5 Jan 10 Feb 2021.      It is called Waving not drowning!        Click icon on the left for Waving not drowning!

They are also putting on LPCF week of SEND.  –  from 25 Jan – 29 Jan.      These are aimed at parents and carers of children with additional needs and professionals who work with them.       Click icon on the right for poster.

More workshops

Contact has quite an extensive range of  virtual workshops for families with additional needs in Jan – Feb.       See workshops for more information.

Positive behaviour

There were a few places left as of Tue afternoon for a Promoting Postivie Behaviour and Autism Workshop.      The workshop will be on Fri 4 Dec at 9:45am and it will be online.       Click icon for details.

Lincoln conference

PAACT is taking bookings for the 22nd Lincoln annual autism conference, Mon 16 – Fri 20 Nov 2020.       Click icon for details.

Lincoln Castle

Only Lincoln Castle grounds are open to the public until 2 Dec.      Click page icon to see visitor update.       Exclusive autism-friendly Explorers sessions at the castle have not yet re-started, though, as of Sept 2020.       Next one may be in the evening.       Click castle icon for background information.

The Groove

The Guildhall Arts Centre has a few virtual events and on-line resources but The Groove has not re-started as of Sept 2020.      Click page icon to set what they have to offer.

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The events on this page are chosen because they may be of interest to a child and/or adult on the autistic spectrum.         See also Local Groups for autism support groups in the South Lincolnshire and beyond.        They put on events in their area.

Dysart Park Fun Day

Unfortunately Dysart Park Fun Day has been cancelled for 2020.       Click icon and scroll down to find the post cancelling all their events.

Family dog workshops

How  pet dogs can help families that have a child with autism.       Dogs for Good has workshops planned for 2020.
Click icon for locations and dates e.g.  10 Jul Lincoln21 Jul Leicester.      Check again nearer the time for Coronavirus updates.

Makaton course

The Makaton course for Friday 20 Mar at Belton Lane Children’s Centre, Grantham has been cancelled

Messy

Zoo Co presents a visual story with original music, puppets and tap dancing.        Performed by a deaf and hearing cast.       This relaxed performance, created in partnership with ADHD Foundation, will be at the Guildhall Arts Centre in Grantham on 17 Feb.       Click icon for web page or poster thumbnail.

Signposting

Lincolnshire Parent Carer Forum (LPCF) will be putting on a general signposting event on Fri 31 Jan in Hubberts Bridge, near Boston.
It will be free to parents and carers.         Click icon and scroll down for details.        See map

Mental health engagement

Give Lincolnshire NHS your feedback on mental health community rehabilitation.         Click icon  for dates in January around the county.

Cinderella

Polka Dot Pantomimes are performing another season at the Guildhall Arts Centre theatre in Grantham.       Click icon for information about relaxed performances.        They are scheduled for 2nd Jan 2020 at 2pm & 6:30pm.         Phone the booking office using (01476) 406 158  or click picture for available seats at:  6:30pm       (2pm  seats sold out.)

Farm quiet hour

Rand Park Farm, near Lincoln, will be putting on a quiet hour for children with additional needs and their families.        Date: 14th Dec, 9 – 10am.        See map        farm layout

Making sense of the senses

Free conference with Dr John Biddolph on Wed 4 Dec at The Fleet, Peterborough.       Click icon for more information including booking details.

Autism Conference

PAACT is taking bookings to attend and for information stands for annual conference in Lincoln on Tuesday 19th Nov 2019.
The venue will be The Showroom, Tritton Road, Lincoln, LN6 7QY.        Click icon for poster.        See also map

Lincoln Castle Explorers

An exclusive opportunity outside of opening hours for children and adults on the autistic spectrum to visit with their families.        Lincoln Castle Explorers, 2nd Nov, 9am – 10am.        Click page icon for event details and to book or castle icon about autism-friendly opening.        See map.

Makaton course

An early years specialist will be running a Makaton course on Friday Oct 4th at Belton Lane Children’s Centre, Grantham.       It will run from 9.30 – 12.30pm and then 12.30pm until 3.30pm with a working lunch.       She will cover Level 1 in the morning and Level 2 in the afternoon.      The cost is £15 per level payable to the trainer on the day.        Morning session recommended for parents.       If you would like to attend contact: ella.mayfield@lincolnshire.gov.uk         See Speech & language about Makaton.

Signposting

Lincolnshire Parent Carer Forum (LPCF) will be putting on a general signposting event on Wed 30 Sep in Market Rasen,        Click icon for details.        See map

Harrowby football match

Harrowby vs Cottesmore football match on Saturday 14 Sep at Harrowby United’s Dickens Road Community Stadium, Grantham, NG31 9QY.       Free entry for under 16’s and carers with Carer’s Allowance letter.         Click icon for poster.        See also map.

Dysart Park Fun Day

GAIN will have a stall at The Dysart Park Fun Day again this year, on Sunday 7th July 2019, 11am to after 4pm.       Click poster thumbnail for official information.        See also:  Facebook      map.

We would be grateful for any donated tombola prizes – old toys, books, food/drink, plants, trinkets, toiletries, teddies, etc (we won’t turn anything down).        Please contact GAIN at
(01476) 855 070 to arrange to drop off or collect.        Thanks to everyone who has already donated prizes, including:  Poundland, Home Bargains, The Works and Subway.

Makaton course

An early years specialist will be running a Makaton course on July 5th at Belton Lane Children’s Centre, Grantham.        It will run from 9.30 – 12.30pm and then 12.30pm until 3.30pm with a working lunch.        She will cover Level 1 in the morning and Level 2 in the afternoon.       The cost is £15 per level payable to the trainer on the day.

Healthy Conversation

The NHS will be holding public engagement drop in sessions around Lincolnshire during May and June.       They want to take soundings about the future of local  health services.

Family dog workshops

Workshops for families with children diagnosed with autism in Lincoln on 7 Jun.       Click icon for details.        See Growing up about Dogs for Good.

Signposting

Lincolnshire Parent Carer Forum (LPCF) will be putting on a general signposting event on Wed 22 May in Lincoln,

Overcoming trauma

Hesley are putting on a free event for parents about overcoming trauma and building resilience for people with autism.        It will be on 8 May in Nottingham.        Click icon for details and to book.

Easter Quest

An exclusive opportunity outside of opening hours for children and adults on the autistic spectrum to visit with their families.        Alice in Wonderland Easter Quest at Lincoln Castle.        Follow the white rabbit and seek out the clues to solve the Mad Hatter’s riddle and claim your chocolate reward.        Sat  20th Apr, 9am – 10am.        Click icon for more information.

East Midlands events

Workshop for parents of special needs children – Coping with Challenging Behaviour.       Wed, 3rd Apr, 10am – 12pm.        25 FREE places available for parents.        At Voluntary Action Rutland, Rutland Community Hub, Oakham, Rutland, LE15 6RB.         To book your free place email westmids.office@contact.org.uk with your name, address and telephone number.        Please also state the age of your child with special needs, and the nature of his/ her disability.        Click poster preview to view.

Professionals

Professional practice

The National Autistic Society has many pages about professional practice.       Click icon to browse their list.
More specifically see:  teachers        Also transition guides:  to primary school        leaving school        mental health

Employ autism network

Ambitious About Autism are looking for people to sign up.       They are seeking employers, educators etc.       Click icon to find their Employ Autism Network page.

Finished at school

Ambitious About Autism published a guide at the end of their Finished at School(FaS) campaign.       The learning it captured is intended to support colleges in developing effective practice to support learners with autism to make a successful transition from school to college and into adult life.        Click icon for guide.

See also:  www.ambitiousaboutautism.org.uk         Twitter has a link to the website at the top of its display.       Once there navigate to:

Menu > Who we are > Campaigns > Finished at School 

Team Around the Child

As a guide, a TAC is required where two or more support services are involved.        Click icon for Lincolnshire Council guidance and assessment portal.

Here is a one stop resourcefor those in need of Teams Around a Child: Early Help Lincolnshire       Here is the TAC website establised by Peter Limbrick who developed TAC.       This link gives a feel for how things might work: TAC meetings

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This is a page for professionals who may be quite new to autism.        See also:  Autism awareness        SEN/EHC Information         Sensory sensitivity for Sensory Processing Disorder under SPD.

TEACCH

Treatmentand Educationof Autistic and related Communication Handicapped Children (TEACCH) is another broad brush approach to working with children or adults with autism.        It has more to do with values and priorities than specific techniques.        Click icon for more detail.
The NAS Early bird programme draws on the TEACCH approach.        See also:  Autism UK       Wikipedia

Training courses

Supporting inclusion

Click icon for Lincolnshire Council pages about supporting inclusion.       It covers aspects of special educational needs & disabilityfor professionals.        They also has a specialist school support services page in  EduLincs            (new)

Lincolnshire has four integrated locality teams.       SENCOs from all early years providers, registered childminders and out of school club managers can request Early Years inclusion support.        See Early years support         It has an inclusion support referralform at the bottom of the page and email addresses.

Working together team

The Working Together Team offers support to schools and academies for students with a wide range of social communicationand / or learningneeds.        See also:  detail          SEN Support – Scroll down to Social communication outreach.

Flash Cards

Sparklebox offer free teaching aids for children with special educational needs.          Here is the Speech page.        Their terms of use are brief.

Co-ordination

Early years can extend as far as the age of 18 with ESCO.       This is short for Early years Support Care & Co-ordination,

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Money

Turn 2 us

Turn2us is a national UK charity providing practical help to people who are struggling financially.        Click icon to browse.        Look out for their benefits calculator.

Welfare benefits

Carers FIRST is the new name for Carers connect.       Click icon for their welfare benefits page.       More broadly, to find out how Carers FIRST fits in with Lincolnshire Carers Service see Families.

Contact has several pages about benefits.        The Disability Living Allowance (DLA) page may be the most interesting but there are others listed in the left margin too.      new

Official information

UK government website has:  DLA for children    new        Lincolnshire Family Services Directory has:  DLA+&+PIP+for+youth         Money-Advice

Also, for information about Carers Allowance see:  NHS        Government.

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See also Money 16+

Personal Budget

If a child or young person has an Education, Health and Care (EHC) Plan, or who has been assessed as needing an EHC plan, then a personal SEND budget can be requested.       Click icon for the Lincolnshire outline.        It contains links to a number of relevant articles.

Here are some frequently asked questions – see FAQ.

Housing

Housing benefits or Council tax support may be available if someone in your household is on a low income.        Click icon for specifics.

Money Matters

This is a guide for parents of disabled children who want to know what financial help may be available to them and what arrangements they may need to make to manage their children’s finances from birth and as they get older.

Family Fund

They provide grants to low-income families with disabled children.           Fill in their application form and post it to their office in York.           For more information click on the icon below.Family fund logoA representative attended a Lincolnshire Parent Carer Council coffee morning in Grantham, in 2012, to promote the scheme.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.         See disclaimer.

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Associated conditions

Demand avoidance

Pathological demand avoidance (PDA) is a profile that describes those whose main characteristic is to avoid everyday demands and expectations to an extreme extent.       Click icon to find out more.        See also: PDA Society        slide show

Mental health

The National Autistic Society has a page about mental health and autism.      Click page icon to view.        Also, Autistica has produced a help sheet about autism and mental health.         Click PDF icon to view.

Here is a handy guide to Healthy coping skills for uncomfortable emotions written by a psychotherapist.         (new)

Patients may be referred to a psychiatrist for associated mental health issues.        See NHS introduction.        Ambitious about Autism has produced a guide to making the most of an appointment.

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Executive Functioning

Executive functions are the brain’s self-management system.         Problems with executive function can be linked to autistic traits in later life.        Click icon for Options help sheet.        It starts with James at school.

For more examples and how to address them read about Josh in this article.

Handwriting 

Options has produced a help sheet about developing early handwriting skills for children with autism.         Click icon to view.      (new)         See also:

  • Letter dominoes is a game that is easy to make yourself.
  • Here is a video tutorial setting out several aids – including pencil grips.        It offers insight into what does and does not work.
  • This video tutorial demonstrates the sock method of teaching proper pencil grip.
  • This video tutorial demonstrates writing 3 letters of the alphabet.        There are more related videos in the margin, too.
  • Some mums provide a sloping board/surface to write on.

Alexithymia

A condition involving lack of empathy.         A difficulty in experiencing, expressing, and describing emotional responses.         Some with autism have this lack of empathy but many do not.        Click icon for an easy reading interview.        Professor Geoff Bird says that alexithymia and autism are independent of each other.

For detailed and definitive information see:  Alexithymia info 

Dyslexia

Dyslexia is a common learning difficulty that mainly affects the way people read and spell words.        Click icon for an easy reading introduction.         Scroll down for comments.

  • For more detail, see  British Dyslexia Association  (BDA).         Includes FAQ.        They also have resources for parents.         And much more …
  • See Dislexia outreach for support in Lincolnshire.        They support parents, teachers, and pupils.
  • See also under handwriting aids below.

Demand avoidance

Pathological demand avoidance (PDA) – part of the autism spectrum.            Click page icon on the left for PDA society website and PDF icon for a PDA Society PowerPoint presentation.

Demand avoidance sounds similar to Oppositional defiance, so what is the difference?         In the PDF file above, page 29, it says that PDA is an autism spectrum disorder rooted in anxiety, whereas ODD is not.

Echolalia

  • Here is an introduction to echolalia.        Mimicry is an efficient way to experiment with different sounds and practice emerging social language skills. 
  • This article offers a medical analysis.        People with echolalia repeat noises and phrases that they hear.      They may not be able to communicate effectively because they struggle to express their own thoughts.         If they struggle to do anything other than repeat what has been said, they may have echolalia.         Some children with autism are regularly tested for this during their speech lessons.
  • Here is a more detailed article about echolalia with autism Even echolalia is a normal way to learn language.        Most children use echolalia to learn language.         The majority of children babble in a rhythmic way, which is actually mimicking the cadence of our language. 
  • In adults Echolalia should normally disappear around two and half years of age.         It is often considered abnormal if it persists beyond age 3 years.

Dysgraphia

Dysgraphia is having difficulty learning to:     1. recognise and write letters and words       2.  link sounds, speech and writing.

  • For an easy reading introduction, see  About Health.           See links for more detailed information.
  • This dedicated Dysgraphia website has been written by a mother and university lecturer, and an undergraduate with dysgraphia.

Dyscalculia

Dyscalculia is a specific difficulty with arithmetic, or maths.

  • The Dyscalculia website looks pretty definitive.           It offers a handy introduction
  • For more information see Dyscalculia Talks.         It has articles to read as well as video clips to watch.
  • The Dyscalculia Conference website is aimed at professionals, but might be interesting to anyone teaching their own child at home.

Dyspraxia

A Developmental co-ordination disorder.

  • For an easy reading introduction, see  NHS Choices.          Scroll down for comments.
  • The Dyspraxia Foundation has a great deal to offer, including introductionchildren,   FAQ.         See also:  Home for helpline and  Local groups – including Leicstershire and Peterborough
  • You may be surprised to learn that it can affect speech, see Speech and Language.

Doc iconSpecific Learning Difficulties

SpLD is an umbrella term used to cover a range of frequently co-occurring difficulties, more commonly:

  • Dyslexia
  • Dyspraxia / DCD
  • Dyscalculia
  • D.D / A.D.H.D

Specific Learning Difficulties (or SpLDs), affect the way information is learned and processed. They are neurological (rather than psychological), usually run in families and occur independently of intelligence. They can have significant impact on education and learning and on the acquisition of literacy skills.

In general, a student may be diagnosed with a SpLD where there is a lack of achievement at age and ability level, or a large discrepancy between achievement and intellectual ability.

See also an analytical view

Tourettes

Tourette’s syndrome is a condition that causes a person to make involuntary sounds and movements called tics.        See introduction

  • Tourettes Action website seems to be the go-to place for all things Tourettes.        Click icon on the left to browse.         They have a Find support menu.
  • The Lincolnshire support group meets in Lincoln and Grantham.
  • Discussions :  Netmums         Tourettes & Aspergers
  • Facebook videos might be worth a look.

Swallowing difficulties

Click icon to view help sheet for people with Autism about Dysphagia by a speech and language therapist.

Epilepsy

Autistica has produced a help sheet about autism and epilepsy.         Click icon to view.  See also Epilepsy Action:  Website             Information           Help & support

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

 

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Tips & issues – Spectrum magazine …

Spectrum magazine

The National Autistic Society publishes The spectrum magazine, containing autistic art, poetry and prose.        Created by autistic people, its content covers all things autism.         Click icon to find out more.        For example Oct 2020 issue.

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See also Coronavirus resources

Mindful mix

Click icon for soundtrack:  Mindful Soundscapes – An escape to the sea with 2 hours of lapping waves.

Contact

Contact – for families with disabled children – was founded by parents.      They seem to know what is what.       Click icon to get to the point.

The podcast university

What to do if you are at a loose end?       This is basically a plug for a number of BBC podcasts that might pique your interest.       Click icon to view.

Thinking styles

  • Temple Grandin says that there are three autistic thinking styles:  visual thinkers, verbal specialists and pattern thinkers.       See post.       It links to a detailed article by another writer.
  • Autism Toolbox, a resource for Scottish schools, offers a more science based analysis.         See article.

Facbook small iconAutism Discussion

Autism Discussion Page is the title of this Facebook page.       It contains brief articles with comments.       Anyone registered with Facebook can add their own comments.

Making your child happier

This article offers Eleven ways you can make your autistic child’s life easier.

Temple Grandin’s FAQ’s

Temple Grandin is a lady with high-functioning Asperger’s who has made an academic career for herself.       Click icon to browse her Frequently Asked Questions page.       The Ask Temple link, in the top left corner, gives you a form for asking your own question.

Ellen Notbohm

This Facebook page offers a handy starting point for several topics from the author Ellen Notbohm.        The award-winning author is known for her popular books and columns on autism, published worldwide in more than twenty languages.        See the Notes option on the Facebook page for key topics.         She also has a website.       The Blog and Articles menu options might be worth a look.

Facbook small iconAutism on The Mighty

We have a number of links from The Mighty on our website and Facebook page.        This page picks out autism related material from their website.       Click icon to browse.

NetmumsDoc icon

  • The Netmums site has quite a few pages  under the Autism/Asperger’s heading.      Clicking the icon to browse.
  • A number of mothers post a description of their situation on this  site – see:  Preschool        School age         Older children / teenagers.
  • To simply browse Netmums use their search box at the top right corner of the page, but for information about the members’ only areas see their registration page,

Evidence-based optimism

The thinking person’s guide to autism is a forum intended to encourage visitors, To think, ask questions, question the media, and learn from each other.        The people behind it say, Autism misinformation clouds and is perpetuated by the Internet.     We want to make accurate information about autism causation and therapies visible, accessible, and centralized.

Christmas 

Ambitious About Autism is publishing a few tips for Christmas under the heading: Include autism this Christmas.       Click icon to view.

Coping skills

Six types of coping skills.        An array of graphics.

The best activities

Ideas about activities for special needs.        After-school and weekend activities for children with disabilities can build self-esteem, skills, friendships and a sense of belonging.

What autism mums do not want to hear

This will ring a few bells for parents of a child on the autistic spectrum.      Things not to say to an autism mum .

Re-charging the batteries

‘Society has programmed us to think, “What kind of mother is she, taking care of herself before her child?”  but that’s completely wrong.’       Here are 10 must dos for parents of children with special needs.

ShoesShoes-left-right

For all those new school starters or those like my son, who is obsessed with his shoes being on the wrong feet, try this.       Cut a sticker of their choice in half and secure it into there shoes to help them identify which shoe goes on which foot.
FB/Rainbow Stars.

Scope

Netbuddy has merged with Scope now.

  • It has  Autism blogs  with real life stories from people with experience of issues around autism.        Scroll down to get an idea what is there.
    You can post your own stories.
  • They offer  Support and Information  divided into quite a few categories.
  • They have  Community champions  make sure the community is a safe, supportive place to be.
  • It also has an  On-line community on which you can post questions and comments.

Surviving Asperger’s Syndrome

This on-line publication takes the form of brief bullet points divided up into chapters.        See:  Survival guide

Tips for married couples

This is for the partner of someone with Asperger’s:  Chat website

Fear busting

Here are some tips on  tackling fear .

Soap Operas

These can provide a handy way to improve emotional literacy and people skills.      Soaps focus on emotional issues and lay it on with a trowel.      For example, see  Roy Cropper  from Coronation Street.

Moving House

Children on the autistic spectrum can find the idea of moving house unsettling, but there are things could do that might help.

  • Tell him obvious things, repeatedly, e.g. that he is moving too.
  • Tell him what familiar things you are taking, e.g. items of furniture.
  • Try to re-create his old bedroom from day one.      This is not a good time for a revamp.
  • Use the same bedding & PJs for continuity.       If necessary leaving them unwashed would be even better.
  • Get PC running in new home from day one.       Buy that computer game he has always wanted and give him free access to the PC around the time of the move.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.        See disclaimer.

Save

Save

Support for carers

Planning for the future

Parents may have concerns about financial provision for the future.       The National Autistic Society offers a wills and trusts phone service staffed by solicitors.         Click icon to find out more.

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Carers UK

For comprehensive information on a range of benefits to which carers might be entitled, click icon and select which benefit looks interesting.

Carer’s assessments

Carers FIRST have produced  an introduction to carer assessments – click icon on the left to view.        For more detail see the Information hub menu on their website.         First point of contact is the County Council’s Customer Service Centre: 01522 782224         carersservice@lincolnshire.gov.uk

Carers UK has produced a more detailed carer’s assessments guide for adult carers of adults (over 18 years) who are disabled, ill or elderly.         They also offer a factsheet.          It has a chapter about carers of adults.          Click icon on the right to see it.

  • A carer’s assessment is an opportunity to discuss with the local council what support or services you need.
  • Are your needs the result of you providing necessary care?
  • Does your caring role have an effect on you?
  •  Is there, or is there likely to be, a significant impact on your wellbeing?
  • If you, or the person you are looking after, are assessed by the local council/trust as needing support, then you or they have a right to ask for a direct payment instead of having the support arranged by the local council/trust.

For information about Carers Allowance see:  NHS      Government.        The National Autistic Society looks at it more broadly in Benefits and care

Support for carers

Lincolnswhire Council offers a broader range of support for carers.         Click icon to browse.        The people there can help you directly or point you in the right direction as appropriate.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Employment

Autistic UK

Autistic UK aim to equip autistic people with the tools to self-advocate.      They also help to equip education, health, and support services to become more accessible to all on the spectrum.      Click icon for their website.

As a community interest company (CIC) they are expected to reinvests surplus profits to do more of their work but can also pay a proportion of this out to the owners or investors.

Autistic tallent

Autism Works is a social enterprise project with a vision to provide worth while employment opportunities to people on the spectrum.        They seek to shape their working environment around an applicant’s skills and needs.        Click page icon for their website.          It is doing this through a computer software testing company called see:detail.         Click PDF icon for their brochure.       The project is based in Newcastle.

Auticon

Auticon is another company, with a presence in the UK, that seeks to nurture autistic talent.        They are an international IT consulting business working with software and data.        Click icon for their website.        Have a look at careers         new

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Adult life

Eric from Singapore has written some handy guides to adult life as someone with Asperger’s.        He addresses aspies everywhere in a readable style with insightful tips.         Click icon and browse under the Real life menu:   Basic work rules          Staying employed         Freelance jobs         Financial literacy        Working with money         Insurance discrimination

For anyone interested in the freelance jobs page, be sure to check points 1 – 3 at the bottom of the page.       Earning a bit of pocket money while living with one’s parents may be straight forward enough but it would be wise to consider the potential risks of going freelance carefully before relying on it in a big way.        Here are is a more mainstream view of avoiding  the risks.

Avoiding job scams

The internet can be very useful but it can pose dangers too.                Here are a couple of helpful guides to avoiding on-line job scams:

warning signs                           Which guide   (new)

Employment for Disabled People
Social Obligation or Individual Responsibility? 

Some people are at the high-functioning end of the autistic spectrum have achieved remarkable things, e.g. Richard Branson and probably Isaac Newton to name but two.     A significant proportion of university lecturers are said to be in a similar category.     But whatever your level of potential the law offers some protection against discrimination in the work place.

The research paper referred to below might be said to offer useful insights to those with disabilities, indicating where they stand in relation to the world of work.      The full article is pretty heavy going though, so the link below takes you into a brief outline.      Click icon to view.

Tips

If you are preparing for the world of work you could probably do with some one-to-one advice and guidance, but here are a few pointers that might help:

  • If you are high-functioning this may be reflected, to some extent at least, in your qualifications, like GCSEs.      Technical work might be right up your street.
  • Whatever your level, it looks good if you can get some work experience – however small and straight forward.     This shows to yourself and possible employers that you are getting somewhere in the world of work.       Voluntary work can be a useful start.    Anyway, it might be wise to start small to begin with and see how you go.
  • There may be some things to avoid:  maybe too much stress or work that requires particularly good people skills.   For example, teaching might not be a good idea for you.
  • If your health affects your fitness for work your GP may be able to issue you with a Fit note, stating the limitations of what you can do.      For example you may need to limit the hours that you do.

For help and advice contact the National Careers Service.       They have:

  • useful things like a CV builder etc.
  • a free phone helpline,  0800 100 900.        They seem to have a calm and relaxed manner, with no pressure.
  • online chat.

Steps to work

This is a programme aimed at parents thinking about returning to work.                 It is run in Grantham on specific dates at either Swingbridge or Belton Lane Children’s and Community Centre.              For more information click on the icon.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

Employment News

The pattern seekers

Simon Baron-Cohen, a leading authority on autism, has written a book called The pattern seekers.      It explains a new theory of human invention, unpicking the instincts and processes that have driven human progress.       He concludes that the great engine of our advancement as a species has been autistic behaviour.       Click icon for a book review.       See also:  Library        Good reads         Amazon         The book may be at bit heavy going, though, if you have no medical qualifications.

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Earlier employment news seemed to come from the USA but there have been development to report in the UK more recently.

Pints of progress

Spotlight Brewery is a social brew collective, providing training and work for people with learning disabilities.         Click icon to listen to a BBC podcast about it.

Ultranauts

Ultranauts was set up to demonstrate that neurodiversity can be a competitive advantage.       At the New York-based quality engineering start-up,  75% of workers are on the autistic spectrum.       Click icon to read about it.

DVLA U-turn

The DVLA has reversed its decision on disclosure for people with autism.       Drivers with autism will only need to disclose diagnosis if their driving is affected.        Click icon for article, dated 5 Mar 2019.

Experts by experience

Have you used NHS services?        Four openings for paid employment for people with learning disabilities in Lincolnshire by the NHS were publicised in 2017.        Click icon to find out about it or have a look at this summary.         Update (2018)

28 years of service

An autistic man was told that he wouldn’t last a month in his job, but now he is to retire after 28 years of service.         Shaun Condon, 54, worked for almost three decades as a cleaner at Newport Bus in Wales.

Trail-blazing companies

Read about what these four major companies are doing for autism employment.        Click icon for article

Fixing appliances

A teenager with Asperger’s in Portland, Oregon has found a friendly supplier of old appliances to get working and sell on.       See  article.

Building careers

One tech start-up’s quest to build careers for people with autism in California.        See article

Ford is hiring

Ford has announced that it will be launching a pilot programme to hire people on the autistic spectrum.        This is in partnership with Autism Alliance of Michigan.         See article.

A teenager named Sam

It can be difficult finding employment when you are on the spectrum, but here is an example of a young man who was able to work behind the bar at Starbucks!

Supported work

The fuss over Lord Freud’s comment, in October 2014, that some disabled people are “not worth” the minimum wage may seem worrying for some.        All the main political parties were at pains to state that all disabled people should continue to be paid at least the minimum wage, though, which gives some reassurance.

There is already a wage subsidy scheme for the benefit of a particular group of disabled employees.       This forms part a a broader package of support for people with disabilities.       You may qualify for this support if you are awarded Employment and Support Allowance (ESA).         Here is a page that tells you How to claim ESA.

Mind campaign

Mind, the mental health charity, believe that mainstream Back to Work schemes are inappropriate for people with mental health issues.        If you agree it might be worth giving their Report summary a look.

But does this apply to people on the autistic spectrum?         See Mental health & autism

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.

ADHD – Hyperactivity

What is ADHD?

Attention Deficit Hyperactivity Disorder (ADHD) is a condition that makes a person inattentive, impulsive and hyperactive.       Click icon for ther NHS introduction.       See also:  Young minds          ADHD foundation        new

Support

Lincolnshire ADHD Support Services offer information and events.       They are a charitable group that offers a frontline service – as they put it.       They are based in Lincoln.        Click icon to view their website.

For more in-depth information, tips and news try the UK based National Attention Deficit Disorder Information and Support Service.         It is a charity run by volunteers.        Here is their website.        Look for the menu in the left margin.

Adults with ADHD

AADD UK is a site for and by adults with ADHD.        It is run by a small group of volunteers.

The science

Click icon for an outline of some recent research on ADHD.       It describes how the brain works in someone with the condition.        To find out what science tells us about the benefits of fish oil for children with ADHD, see Does fish oil help?

Find out more

Here are some books available from Grantham public library.        If the book you want is at another library you can ask for it to be brought to Grantham and reserved for you.       Amazon. also has books on ADHD.

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GAIN logo - thumbnailPlease be aware that we, at GAIN, are not qualified to give advice.              See disclaimer.