Topical information

Simon Baron-Cohen

Here is a nuanced article about Simon Baron-Cohen’s views on autism, written in 2011.       He is a professor and director of Cambridge University’s Autism Research Centre.        Click icon to view.

In this article from 2020, the emphasis seems to have shifted a bit from understanding and addressing difficulties with autism to setting out the potential of the autistic mind.       It reviews the book in which he describes autistic people as pattern seekers.

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For key websites see Information.

Lincolnshire Autism Partnership

The LAPB is designed to try and improve support for autistic people.       Have your say.      Click icon for more information.       See also history        Email:  Autism.Partnership@lincolnshire.gov.uk        They launched a monthly newsletter Autism Lincs early 2017.       See Issue 1 and click Past Issues at top left of screen to find all issues.    

GP register

NICE is recommending that GPs in England keep a register of patients with autism in order to improve the care they receive.      The guidance from NICE needs to be accepted by NHS England before it is put into practice in GP surgeries in England.       See also NICE.

For those worried about data security see Should people register?        The information is stored at the NHS data centre and can only be seen with permission.        People have to explain why they need your information and what they plan to do with it.       This means that agencies such as social services, schools etc should not have access to this information.

Carers UK

Carers UK is a charity which works to help carers by providing information, advice, support and by campaigning for change.       Click icon for their website.

  • They offer a wide range of Help & advice  including information on the range of financial support that is available to carers through the benefit system.
  • For information about Carer Support specifically for carers of children under 18 and young carers see Carer Assessments.
  • For more detaied information see resources.        Having the right information at the right time can make a huge difference for the carer and the person they care for.
  • Have a look at Talk to us about their Advice line including advice line hours:     0808 808 777.

For information specifically for carers of adults see adult Care & Support.

Family Court

If you need legal support for a case about your child, maybe to do with care or adoption, you may want to know about CAFCAS.        It stands for Children and Family Court Advisory and Support Service.      Their website has menus for both Young people and Grown-ups.        Click icon to browse.

Here are some Top tips for dealing with CAFCAS from Net Mums.       Also, it might also be worth bearing in mind that the people at CAFCAS may not know how to deal with a child on the autistic spectrum.      This link to the National Autistic Society web page  About autism  could be useful if you wanted to print off some explanations that might help them to understand your child.

Things seem to have Improved according to Ofsted since 2008, when they found Progress inadequate,      The Guardian reported on apparent Success in 2012 of a management initiative to make the “health and wellbeing of social workers a priority in the workplace”, which, the Guardian said, includes CAFCAS.     Then in 2018 Ofstead published a glowing report.

Cereba

This UK based website offers a wealth of information.       It is a national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support.       Click icon for their website.      They have an Advice & support page.       Topics include legal, education and emotional

They also produce a toolkit that aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of healthsocial care and education support services.       It was developed at Cardiff Law School.       Click icon to view.

Learning Disability Partnership

The Lincolnshire Learning Disability Partnership Board aims to make sure that different people, organisations and agencies work together to improve the lives of people with learning disabilities.       Board members include: people with a learning disability, parents and carers.

Click icon for more about them.       Email:  Marie.osullivan@voiceability.org        01522 706 580       This group is quite separate from the Lincolnshire Autism Partnership.

Different not less

Steve Silberman puts some flesh on the bones of this slogan with hard-headed analysis and vision.       Click icon to view article.        It has a 14 minute video at the bottom of the page that explains his thinking.

Asperger’s Syndrome

The Asperger”s Syndrome Foundation offers quite a bit of insight:   What is Asperger’s Syndrome?        Information sheets        Click icon for their home page.

Dealing with stress & panic attacks

It would be nice to get to the root cause of difficulties, but it may often be a case of finding ways to cope with the effects.       Here are are a couple of fact sheets that might be worth a look:

Stress and autism spectrum disorders          Panic attacks and autism spectrum disorders