Click icon for a Healthwatch Lincolnshire statement about difficulties getting an NHS Dentist in Spalding after a meeting on 31st October 2017.
Children on the autistic spectrum are often attracted to toys or games that use computer
technology. Here is the National Autistic Society’s guide to Using technology.
The National Autistic Society’s Online shop has a large collection of books and DVD’s about
Autistic Spectrum Disorder (ASD) and management of the condition. There are approximately 300 titles available. The books cover all aspects of autism, behaviour, bullying, employment etc.
A few of the booklets are free to download from the NAS website including:
- After Diagnosis (Parents of children)
- Women / girls
- What Next (Adults)
- Asperger United (Magazine for Adults)
- Good practice guides (for professionals)
There is also a wealth of information pages to browse. Look at the menus at the top of each web page and the topics at the
bottom of each page. To view click the icon on the right.
Ambitious about Autism
Click the icon to browse this website. It offers a lot of information about autism and it is very well presented. If you are over 16 you can Talk to others who have joined their on-line community. They say it is friendly, supportive and welcoming to new members. You can discuss anything related to autism. The community has moderators and guidelines.
One of the hardest parts of being a parent of someone who is very vulnerable is learning how to trust other people to share in the taking care of them. In my experience, the difference is nearly always entirely down to whether or not the staff member concerned and I, as the family member, have a good relationship, built on mutual trust, respect, acceptance and understanding.
This UK based site offers sex education DVD’s. This one aimed at children with SEN may be of particular interest. Others are aimed at primary or seconday aged children in mainstream or SEN education. See also Be safe on-line.
- The National Autism Association (USA) website has some pages on safety. Those on wandering and bullying might be of particular interest.
- Here are some tips for keeping your child with special needs safe at home.
- Also, a book by Luke Jackson with the title Freaks, Geeks and Asperger Syndrome has a well written chapter on bullying. See Library books for more about this book.
Siblings, that is brothers and sisters, can be affected by their sibling on the autistic spectrum.
- Options Group have produced a handy new guide to supporting siblings.
- The National Autistic Society has a range of pages with information about siblings. See also support networks. Nottinghamshire is the nearest NAS branch for support.
- It is not all bad news. See: What my autistic brother has taught me.
- Ambitious about Autism has a discussion about Sibling envy.
- NetMums has a discussion about Copy-cat siblings. Mums talk about a neuro-typical child copying one who is on the autistic spectrum. They also have a discussion about Explaining autism to a sibling.
- Here is a complete article about Explaining Aspergers to a child.
AS Support Group
AS Support Group Online is UK based and offers information, guidance and opinion from people with Asperger’s Syndrome. The content is thoughtful and well laid out. Contributors are not afraid to go out on a limb and say it the way they see it.
See: Home About History
NICE is recommending that GPs in England keep a register of patients with autism in order to improve the care they receive. The guidance from NICE needs to be accepted by NHS England before it is put into practice in GP surgeries in England. See also NICE.
For those worried about data security see Should people register? The information is stored at the NHS data centre and can only be seen with permission. People have to explain why they need your information and what they plan to do with it. This means that agencies such as social services, schools etc should not have access to this information.
This UK based website offers a wealth of information. It is a national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support. See: Home Help & Info Topics include Anxiety, Money, School Transport and Research among many others.
Different not less
Steve Silberman puts some flesh on the bones of this slogan with hard-headed analysis and vision in this article. It has a 14 minute video at the bottom of the page that explains his thinking. “By focusing exclusively on long-range research into alleged ‘risk factors’ for autism, while ignoring the need to dramatically improve the quality of life for autistic people and their families today, we fool ourselves into thinking that autism is a
‘puzzle’ that will be solved by the next medical breakthrough.” “Instead of forcing potential autistic employees to prove their worth by charming a
recruiter in a face-to-face interview, SAP takes potential employees through a five-week process in which the candidates can demonstrate their abilities by showing the quality of their work in ways that draw on their natural strengths and interests.”
Stickman Communications produces a range of colourful awareness cards. See range of cards Prices are in UK £, as with the NAS below.
The National Autistic Society (NAS) also produces a couple of products that can be useful in public spaces, like a supermarket:
- A batch of 50 autism awareness cards: “This person has autism …”.
- A single plastic wallet with card to keep inside and a key facts leaflet. See also photos of what looks like the same thing – it would be nice to have more information.
Dealing with stress & panic attacks
It would be nice to get to the root cause of difficulties, but it may often be a case of finding ways to cope with the effects. Here are are a couple of fact sheets that might be worth a look:
Getting things sorted
This toolkit aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support services. It was developed at Cardiff Law School. Click icon to view.
Please be aware that we, at GAIN, are not qualified to give advice. See disclaimer.