For key websites see Information.
NICE is recommending that GPs in England keep a register of patients with autism in order to improve the care they receive. The guidance from NICE needs to be accepted by NHS England before it is put into practice in GP surgeries in England. See also NICE.
For those worried about data security see Should people register? The information is stored at the NHS data centre and can only be seen with permission. People have to explain why they need your information and what they plan to do with it. This means that agencies such as social services, schools etc should not have access to this information.
Steve Silberman puts some flesh on the bones of this slogan with hard-headed analysis and vision. Click icon to view article. It has a 14 minute video at the bottom of the page that explains his thinking.
This UK based website offers a wealth of information. It is a national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support. Click icon for their website. They have a Help & Info page. Topics include Anxiety, Money, School Transport and Research among many others.
They also produce a toolkit that aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support services. It was developed at Cardiff Law School. Click icon to view.
Stickman Communications produces a range of colourful awareness cards. See range of cards Prices are in £, as with the NAS below.
The National Autistic Society (NAS) also produces an autism alert card that could be useful in public spaces, like a supermarket: single plastic wallet with card to keep inside and a key facts leaflet. See also photos of what looks like the same thing.
Dealing with stress & panic attacks
It would be nice to get to the root cause of difficulties, but it may often be a case of finding ways to cope with the effects. Here are are a couple of fact sheets that might be worth a look:
Click icon for a Healthwatch Lincolnshire statement about difficulties getting an NHS Dentist in Spalding after a meeting on 31st October 2017.