Take part in research – self-harm in autistic people


Mirabel Pelton is a researcher in the Mental Health in Autism group at the School of Psychology, University of Nottingham, led by Dr Sarah Cassidy.    She contacted GAIN inviting adults over 18 who have self-harmed in the last 6 months to take part in their study,

Existing research shows that autistic people self-harm more often than non-autistic people but there are no assessment tools or interventions to effectively assess, support or treat these difficulties.      Card sort task for self-harm helps people describe what happened before and after they self-harmed.     Click icon to find out more about the Card sort task.     There is a video introduction.

See also:  The project.        It is open to take part until it finishes in August 2022.

Cambridge research

Would you like to register with the Autism Research Centre (ARC) at the University of Cambridge, headed by Professor Simon Baron-Cohen.     They aim to understand the biomedical causes of autism spectrum conditions, and develop new and validated methods for assessment and intervention.      They are looking for adults and parents of children with an autism diagnosis.

Click PDF icon for poster or twitter icon for updates about taking part.
See also:  website        volunteers



Just dance

Researchers at the University of Essex are currently working on a new project that involves autistic children playing the exercise game Just Dance with their parent or primary caregiver at home.      Online taster session on 15 September 2021.     Click icon to find out more.

GAIN was contacted by Phoebe Morris (MBPsS). PhD Studentship at the University of Essex.

School environment

This is a study of the ways in which a changed school environment has affected primary school children with ASD.    Would any parents/carers with a child aged 5-15 who has been diagnosed with Autism Spectrum disorder like to take part in three online questionnaires?       Click icon for a letter from the researcher and a link to the first survey.

Sleep study

The University of York is running a project charting the early sleep patterns of infants at risk of developing Autism Spectrum Disorders.     If you have a baby with an older brother or sister with Autism they would love to hear from you.     This project explores sleep patterns in infant siblings through the use of sleep diaries.     Click icon for poster.     The university will provide all items and materials as needed.       (Posted Oct 2017)

Child study

Are you a woman with autism?      Are you pregnant?      Click icon for the study poster.       Here is the study summary.     See also the website associated with their email address.

Carer technology

Would you be interested in taking part in a 3 month trial of a technology package to assist in co-ordinating home care?

1.      It provides the person being cared for with greater social interaction with their friends and family as well as reminding them to take their medication.
2.      Gives Carers the peace of mind with information about the person they are caring for such as through movement sensors confirming that they have visiting the toilet, opened the fridge door or medicine cabinet.         This is done by setting up various sensors and equipment, such as blood pressure monitors that can be linked to the technology.

See:   Technology       Letter        Form         Everyone website – emerging from Lincolnshire Carers & Young Carers Partnership (LCYCP)

Button - playNon-compliance behaviour

Could you spare some time for a telephone interview for a research project.            Click button for a video introduction.

Here is a little bit of background information about the project, that could be posted up to accompany the video:

We are researchers at the School of Psychology, Queen’s University Belfast and our project focuses on children’s non-compliance behaviour.
Non-compliance behaviour is when a child:

  • Ignore your requests…
  • Tries to talk their way out of doing things
  • Directly defies you
  • Says “no” a lot

Almost all children show some of these behaviours, but some children with autism seem to struggle especially with these sorts of behaviours.
Surprisingly little research has been carried out on why some children particularly struggle with non-compliance.    We aim to find out more about the factors that can influence the non-compliant behaviour children show so that we can start to develop bespoke helping strategies specifically designed for these behaviours.

We would like to hear from you if you are a caregiver of a child aged 5-11 years old who frequently shows the behaviour described above, and who behaves like this across different settings and where you feel the behaviour may be having a negative impact on the child and/or on the family. 

In this initial study, we would like caregivers to take part in an interview over the phone to talk about the behaviour.      Everyone who takes part will receive a feedback report about what we have found when this initial study is finished and we will update any families who wish with information about our ongoing progress in this project and future participation opportunities.

If you are interested in hearing more about the study and would like more information, please contact:

  • Katherine Grady:          kgrady01@qub.ac.uk                07926 076 790 
  • Luke McCann:               lmccann32@qub.ac.uk
  • Kate Woodcock:            k.woodcock@qub.ac.uk            028 9097 4886

The interviews are due to be completed by the end of June 2016.

Self-Injurious Behaviour

This was an on-line survey.      The project leader said, We have developed two new questionnaires which measure beliefs about suicide and nonsuicidal self-injury.        Dr Andy Siddaway

See also  Support sheet       Stirling University