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Neuro-diversity

Neurodiversity

The idea behind neurodiversity is that  brain differences with conditions like autism are normal and can be beneficial.      Here is an introduction to neurodiversity.      To get an idea where it might be heading as a movement click icon.

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This page is dedicated to publications from the viewpoint of people who do not fit in with today’s prevailing norms, notably Asperger’s Syndrome – and those close to them.

Steve Silberman

Steve Silberman is an award-winning science writer and has a lot to say about autism.       Click icon to browse his website.       In particular, look for the video in the right column: The forgotten history of autism.       See also Profile

The man who wants us to embrace autism

See Guardian article       It explores his views and insights.       For example, Two further developments, thinks Silberman, make life much brighter for people with autism today.      One is social media: “In face-to-face, real-time interactions, people on the spectrum are often overloaded.       Conversation, eye contact, body language, all the little social signals – that can get too much.       Whereas, on the computer, at their own pace, it’s often much more natural to them.”   

He is the author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversitysee Amazon.       

Autism as a mode of being

Dan Edmunds is a psychotherapist in Pennsylvania.       He is involved with the autistic rights movement.        He seeks to understand the autistic person rather than trying to change him or her.       Click icon for his article about Autism.        How does this work out in practice?

Difference or disorder?

There are two ways of thinking about disability.      It seems to depend on how you look at it.        Click icon for an article.

Also, this forum post sets out how the writer sees legislation based on the social model of disability working out.

Amythest Schaber 

Amythest Schaber is an artist, writer, public speaker and advocate.         In her blog called Neuro Wonderful she offers insight into autistic life, put across in her unique style.        Click play icon to see her range of videos.       For example:  What is autistic burnout?
Something new!

Stories from the spectrum

What is it really like to be an autistic adult?       The National Autistic Society has collected together stories from a variety of people across the autistic spectrum.       Click icon to browse and see what they have to say.

Also, ITV has produced an autism awareness series.       For example, Professor Ian Walker shares his story.
He is a retired university lecturer who was only diagnosed with autism at the age of 71.      Click link below to see article and video clip.       Find more interviews from the series at the bottom of the ITV page.

What is it really like?

Autistic not weird

This is a website by a special needs tutor with Asperger Syndrome.       Click icon on the right to browse.       For example:  Being different

Why advertising falls flat

This article considers the possibility that people with autism might be savvier consumers.        Click icon to see article.

Autistic Allies

This is a discussion group for members.       They stress that it  is NOT a support group.      Their goal is to eradicate stereotypical images of autism, and to promote an autism-positive stance.        Click icon for Facebook group.        You have to join the group to see content.        See also Austism-positive.

NeuroDivergents

Monique Craine is a blogger, activist and campaigner for NeuroDivergent (ND) rights, AKA Human Rights.          She says, This video was inspired by a Powerpoint presentation which I delivered in the past – which people claimed ‘opened their eyes’ to autism.          It has been receiving praise from the autistic community, autism professionals and parents.          Click play button to watch.

Non-speaking / low-functioning?

I am autistic, non-speaking. I am also labeled “low-functioning”.      This label is a pre-judgment based on what I cannot do.       It makes people look at me with pity instead of trying to get to know me, listen to my ideas.

Facbook small iconAutonomous Press

Owned by disabled workers, Autonomous Press seeks to revolutionize academic access.                  This can refer to a lot of things, e.g.  access to higher education, inclusive class environments …           See About for more information.

Neuro-cosmopolitan

This website could be a treasure trove for the gifted academic or teacher.

  • Here is one of the author’s more accessible articles: Advice to Young Autistics I did learn to navigate the neurotypical social world. But I didn’t approach that task with the intention of trying to change myself in order to “fit in.” I approached it as an adventure in learning my way around an exotic foreign culture.
  • This could be a good starting point for further reading: Neuro-what?

OutlookBe awesome

These links are all from the Ollibean website.         If you are always questioning things, maybe a bit of a non-conformist, this site could be a useful starting point.

  • Attitudes  –  We need to start to change how non-disabled people see disabled people, and then we can begin demanding a change in attitude.        We have enough true allies to join and support us, and we can demand what we decide we need to live a fulfilling human life.
  • Be awesome   –  Ableism – discrimination against disabled people, often unconscious/implicit.        Ableism brought forth by pity is frustrating.        It gets in the way of possibilities.
  • Universal design  –  When more people participate, everyone wins because human beings learn from each other –   e.g.  Captioned videos, films and TV help with literacy, including literacy of non-disabled people.
  • False choices  –  e.g.  Is autism a disability or a difference?

Original and tribal minds

What started out as an explanation for autistic behaviour has with twelve years of obsessive thought become the basis for a profound shift in thinking about psychology.       See introduction.

Key words

Ableism:  quick          detail
Autism-positive:       article
Aspie:                description
Neurodiversity          article

Related Activities …

Table tennis

Have you discovered the free outdoor table tennis in Wyndham Park, Grantham ?       It is next to the tennis courts.      See map to find the park at  NG31 9BA.

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These activities and events are not run by GAIN but could be of interest.        See also:  Wider area activities  and  Local groups  for the surrounding area around Grantham.       For holidays in Lincolnshire see Take a break.

Grantham Lynx SwimLynx Swim logo

  • Grantham Lynx Disability Swimming Club.
  • Meets Wednesdays 6.30pm -7.30pm Grantham Meres.
  • New members and volunteers always welcome.

Just turn up at the Meres.      As you go in there will be a table on the right with two ladies and the Lynx swimming sign.      They do not swim in school holidays, that includes half terms. *      Click icon to find them on Facebook or Twitter.      They include some community news from members.

Rainbow Flyers Youth ClubRainbow Flyers Youth Club

This is a special needs club at Ruskington Youth Centre, NG34 9DY, on Sundays 3-5pm.           Ruskington is a village near Sleaford.          Parents can simply turn up with their children.       They would love to see some new faces.       Click image on the left to find out what is what.        See local groups for more information.

Little Jack’s Farm

Little Jack’s Farm is a family run children’s farm on the outskirts of Bottesford.      See map

Grantham Making Noise

At Guildhall Arts Centre      1st and 3rd Saturdays of the month: 12:30 – 14:30          Click icon for more information.       Perhaps a good place to find out what is happening at present would be cotact us.       See also:  article.

The Groove

An exciting, fun-filled night for adults with disabilities aged 16+, their families and support workers.      Guildhall Arts Centre Ballroom, Grantham.       Click icon for the Guildhall contact us page – perhaps a good way to find out what is happening at present.

Grantham College Day Break

For a personalised day opportunity for adults with a learning disability, see:  Brochure         Introduction         Webpage

Lincolnshire Parent Carer Forum (LPCF) Coffee Mornings

This is the new name for Lincolnshire Parent Carer Forum (LPCF).
No need to book.      Meet other parents of children with disabilities and additional needs.          

10.30am – 12 mid-day,   every 2 months at Urban Hotel, Swingbridge Road, Grantham, NG31 7XT,    map.          For dates see website.

Drama groups

Is your child a born performer?

  • The New Youth Theatre has 4 age groups, ranging from 3 – 16 years of age.
  • The Happy Little Drama Club for started on 8 September 2014.        They have 2 age groups ranging from 8 – 13 years of age.

Both groups above are in Grantham.       These are mainstream groups.       See Wider area for a group in Lincoln specifically set up for children with additional needs.        See The Science page under Drama & Performance activities for information about possible benefits.

What’s on

Keep up to date with arts, leisure and culture in South Kesteven.         Click icon for more information.

Take part in research – Just dance

Just dance

Researchers at the University of Essex are currently working on a new project that involves autistic children playing the exercise game Just Dance with their parent or primary caregiver at home.      Online taster session on 15 September 2021.     Click icon to find out more.

GAIN was contacted by Phoebe Morris (MBPsS). PhD Studentship at the University of Essex.

Cambridge research

Would you like to register with the Autism Research Centre (ARC) at the University of Cambridge, headed by Professor Simon Baron-Cohen.   They aim  to understand the biomedical causes of autism spectrum conditions, and develop new and validated methods for assessment and intervention.      They are looking for adults and parents of children with an autism diagnosis. 
Click PDF icon for poster or twitter icon for updates about taking part.
See also:  website        volunteers

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Archive

School environment

This is a study of the ways in which a changed school environment has affected primary school children with ASD.    Would any parents/carers with a child aged 5-15 who has been diagnosed with Autism Spectrum disorder like to take part in three online questionnaires?       Click icon for a letter from the researcher and a link to the first survey.

Sleep study

The University of York is running a project charting the early sleep patterns of infants at risk of developing Autism Spectrum Disorders.     If you have a baby with an older brother or sister with Autism they would love to hear from you.     This project explores sleep patterns in infant siblings through the use of sleep diaries.     Click icon for poster.     See also official project information.   The university will provide all items and materials as needed.       (Posted Oct 2017)

Child study

Are you a woman with autism?      Are you pregnant?      Click icon for the study poster.       Here is the study summary.     See also the website associated with their email address.

Carer technology

Would you be interested in taking part in a 3 month trial of a technology package to assist in co-ordinating home care?

1.      It provides the person being cared for with greater social interaction with their friends and family as well as reminding them to take their medication.
2.      Gives Carers the peace of mind with information about the person they are caring for such as through movement sensors confirming that they have visiting the toilet, opened the fridge door or medicine cabinet.         This is done by setting up various sensors and equipment, such as blood pressure monitors that can be linked to the technology.

See:   Technology       Letter        Form         Everyone website – emerging from Lincolnshire Carers & Young Carers Partnership (LCYCP)

Button - playNon-compliance behaviour

Could you spare some time for a telephone interview for a research project.            Click button for a video introduction.

Here is a little bit of background information about the project, that could be posted up to accompany the video:

We are researchers at the School of Psychology, Queen’s University Belfast and our project focuses on children’s non-compliance behaviour.
Non-compliance behaviour is when a child:

  • Ignore your requests…
  • Tries to talk their way out of doing things
  • Directly defies you
  • Says “no” a lot

Almost all children show some of these behaviours, but some children with autism seem to struggle especially with these sorts of behaviours.
Surprisingly little research has been carried out on why some children particularly struggle with non-compliance.    We aim to find out more about the factors that can influence the non-compliant behaviour children show so that we can start to develop bespoke helping strategies specifically designed for these behaviours.

We would like to hear from you if you are a caregiver of a child aged 5-11 years old who frequently shows the behaviour described above, and who behaves like this across different settings and where you feel the behaviour may be having a negative impact on the child and/or on the family. 

In this initial study, we would like caregivers to take part in an interview over the phone to talk about the behaviour.      Everyone who takes part will receive a feedback report about what we have found when this initial study is finished and we will update any families who wish with information about our ongoing progress in this project and future participation opportunities.

If you are interested in hearing more about the study and would like more information, please contact:

  • Katherine Grady:          kgrady01@qub.ac.uk                07926 076 790 
  • Luke McCann:               lmccann32@qub.ac.uk
  • Kate Woodcock:            k.woodcock@qub.ac.uk            028 9097 4886

The interviews are due to be completed by the end of June 2016.

Self-Injurious Behaviour

This was an on-line survey.      The project leader said, We have developed two new questionnaires which measure beliefs about suicide and nonsuicidal self-injury.        Dr Andy Siddaway

See also  Support sheet       Stirling University

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Not getting out

Learning a new skill

How do you learn to go out of the house when you’ve got agoraphobia?      Click icon to listen to a radio interview with Ellie.

NHS

The NHS section on not getting out, or Agoraphobia, gives us a pretty clear picture of  established scientific opinion.      Click icon to browse.      There is a link to treatment – including self-help tips.

National autistic society

Searching the National Autistic Society site for agoraphobia leads to a page on anxiety.     Although it is aimed at professionals It may provide some useful context.      Click icon to view.      Under the sub-heading Are autistic people more likely to be anxious? they include fear of open spaces and crowds.

They also have a handy article on Anxietyy in autistic adults.       It provides links for autistic adults and parents.

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Introduction

Just a quick tip:  perhaps you could try using one of the following statements:

  1. “I can be anxious and still deal with the situation.”
  2. “I’ll just let my body do its thing. This will pass.”
  3. “This anxiety won’t hurt me, even if it doesn’t feel good”.
  4. “This feeling isn’t comfortable or pleasant, but I can accept it.”

Experiences

Click icon to find out how others have found their way through panic attacks.        Also, someone with high-functioning Asperger’s describes their own experience dealing with anxiety.

More detailPanic attacks etc

  • What is the range of symptoms?
  • Can people with high functioning Asperger’s be severely effected by
    anxiety?      It seems so:
    – High functioning autism is associated with anxiety disorder.
    – A discussion of the link between high IQ and anxiety
  • Can virtual reality help with not getting out?      Video           Text           Research

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Treatments & Therapies

Occupational therapy

Why is occupational therapy important for autistic children?       Although this article is aimed at professionals it can give parents some idea about help that is out there.      Click icon to see National Autistic Society article.      See also the NHS page about occupational therapy.

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See also Specialist services under the heading Cauldwell Autism Services.

Colouring books

Click icon for a review of  The Healthy Coping Colouring Book and Journal.      Have a look at Amazon for this book and others like it.      People say that they are more than simple colouring books.

Can autism be cured?

Autism is a life-long condition – it cannot be cured.      But there are a range of methods of enabling  and assisting learning and development.

Responsive Communication

The Caldwell Autism Foundation is building a network of skilled practitioners across the UK to provide Responsive Communication support.       Click icon for the website.         It seeks to address the needs of hard to reach individuals.        Click play button for a list of video clips.      They offer detailed insights into the way the autistic mind works.       

Food Challenges

Click icon to view Options helpsheet, Facing food challenges for those with autism & sensory processing differences.

Dance movement psychotherapy

Options Group has produced a help sheet about dance movement psychotherapy.      They say that it is about creating a safe place in which to explore movement, dance, props and play.      See Specialist services about Options Group.

Rapid Prompting Method

Establishing the effectiveness of an approach to helping children with autism can be vexing.     The Rapid Prompting Method (RPM) is a relatively new communication technique developed for people with severe autism.       It is controversial and is, at best, only applicable in a minority of cases.       Click icon for more about it.     

Here is an intelligent Critique.      The author believes that the method is still at an exploratory stage.      He is, at time of writing, sceptical about its potential.

Asperger Experts

Danny Raede has discovered for himself ways of understanding and coping with the difficulties he experiences as someone on the spectrum.       He has formed Asperger Experts to guide and support others in the same boat.       See:  about us

Click icon for his website and look under the Browse menu option.        This part of the website is free to all.

Counselling

See Kooth on-line support in Growing up or Cognitive Behavioural Therapy in Adults.

Aroma-therapy & reflexology

To ease symptoms of stress, you might consider aroma-therapy or reflexology.

Sensory rooms

Where funds allow it may be possible to adapt a room in your own home.       GAIN cannot recommend any items of equipment or their use.       Just to give you an idea of what is available, here is one source of sensory equipment.       Here are some ideas of who might benefit and what could be selected.

Emotional & mental well-being

While autism is about development rather than mental health, people with autism may have mental health issues too.      See Emotional well-being in Growing up for resources and services in Lincolnshire.

Key terms

Psychology, psychiatry and psychotherapy:  NHS

Neurodiversity is a concept and a movement in support of people on the autistic spectrum.
It holds that autism is a valid way of being.

Support for carers

Support for carers

Lincolnswhire Council offers a broader range of support for carers.      Click icon to browse.      It includes breaks for carers.      See also:  Support and benefits for carers on the NHS website.       new

The people at Lincolnshire Customer Service Centre can help you directly or point you in the right direction as appropriate.
Phone:  01522 782224

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Carers UK

For comprehensive information on a range of benefits to which carers might be entitled, click icon and select which benefit looks interesting.

Carer’s assessments

Carers FIRST have produced  an introduction to carer assessments – click icon on the left to view.      For more detail see the Information hub menu on their website.       First point of contact is the County Council’s Customer Service Centre: 01522 782224       carersservice@lincolnshire.gov.uk

Carers UK has produced a more detailed carer’s assessments guide for adult carers of adults (over 18 years) who are disabled, ill or elderly.       They also offer a factsheet.        It has a chapter about carers of adults.        Click icon on the right to see it.

  • A carer’s assessment is an opportunity to discuss with the local council what support or services you need.
  • Are your needs the result of you providing necessary care?
  • Does your caring role have an effect on you?
  •  Is there, or is there likely to be, a significant impact on your wellbeing?
  • If you, or the person you are looking after, are assessed by the local council/trust as needing support, then you or they have a right to ask for a direct payment instead of having the support arranged by the local council/trust.

For information about Carers Allowance see:  NHS      Government.       The National Autistic Society looks at it more broadly in Benefits and care

Planning for the future

Parents may have concerns about financial provision for the future.      The National Autistic Society offers a wills and trusts phone service staffed by solicitors.       Click icon to find out more.

Money

Personal Budget

If a child or young person has an Education, Health and Care (EHC) Plan, or who has been assessed as needing an EHC plan, then a personal SEND budget can be requested.      Click icon for a factsheet from Contact.       See also NHS guide.

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See also Money 16+

Turn 2 us

Turn2us is a national UK charity providing practical help to people who are struggling financially.      Click icon to browse.      Look out for their benefits calculator.

Welfare benefits

Carers FIRST is the new name for Carers connect.      Click icon for their welfare benefits page.       More broadly, to find out how Carers FIRST fits in with Lincolnshire Carers Service see Families.

Contact has several pages about benefits.      The Disability Living Allowance (DLA) page may be the most interesting but there are others listed in the left margin too.

Official information

Housing

Housing benefits or Council tax support may be available if someone in your household is on a low income.      Click icon for specifics.

Money Matters

This is a guide for parents of disabled children who want to know what financial help may be available to them and what arrangements they may need to make to manage their children’s finances from birth and as they get older.

Family Fund

They provide grants to low-income families with disabled children.        Fill in their application form and post it to their office in York.        For more information click on the icon below.Family fund logoA representative attended a Lincolnshire Parent Carer Council coffee morning in Grantham, in 2012, to promote the scheme.

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SEN/EHC Information

SEND local offer

Click the icon to see the Lincolnshire County Council guide to SEN & disability local offer.       It includes Where to start

Official guidance

Liaise is Lincolnshire’s Special Educational Needs and Disability Information, Advice and Support Service

Click the icon on the left for an introduction to Liaise – an official source SEND information.      new        It has some brief video introductions.

Click icon on the right to browse a single overall guide.       It touches on the Graduated Approach under the heading Working Together Team – page 27.       For more about this approach see:  Graduated Approach

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Ace Education

ACE Education provides independent information for parents on education issues in England.       Click icon for an introduction to Special Educational Needs and related issues.       See also home      parents – for more educational issues

EHC plans

An education health and care plan sets out how children and young people should receive support for their special educational needs (SEN) at school and college.       Click icon for the National Autistic Society’s guide.        See also the official outline.

Team around the child

Team around the child has put together a guide in the form of letters to parents and professionals to introduce key experiences faced by many families in this situation and to highlight their needs.        Click icon to browse the guide intended to support families of children with complex needs and the professionals who care for them.        See also background.

Look it up

Contact offers a range of pages to do with education & learning with SEN.       Click icon to browse.

Parents’ View

The Special needs Jungle is a parent-led resource offering information and informed opinion about children and young people with SEN.

  • See  SEND flowcharts      EHC plans  for example.
  • Their SEND Info menu, at top of screen, offers more detail about Special Educational Needs.        Hover over it to see what is there.
  • Education may be linked to health these days.         See their Health menu.
  • Also, how are the SEN & Disability reforms of 2014 going?       See Education News.

SPELL

SPELL is a framework for understanding and responding to the needs of children and adults with autism.       It stands for Structure, Positive approaches and expectations, Empathy, Low arousal, Links.      Click icon to find out more.

SEND code of practice

The SEND code of practice lays out the statutory guidance for organisations such as schools who work with children who have Special Educational Needs.        Liase talks about it as the parent’s bible for SEND meetings.       Alternatively, see publication.

  • Chapter 6 – This chapter applies mostly to mainstream schools. (Page 91)       Liase says to print this chapter and use highlighters and a pencil to note each paragraph for use at your SEN meeting at school.
  • Chapter 9 – This chapter covers all the key stages in statutory assessment and planning and preparing the Education, Health and Care (EHC) plan.

2014 SEND changes

Education Health and Care plans were introduced in 2014, replacing the Statement of Educational Needs.        Click icon to find out how things changed.

Troubleshooting

Our SEN/EHC Support page has quite a bit of information that could help with troubleshooting.        Click icon to view.

Interest News – Tour de France

  • Tour de France: 2021:   This year Le Tour takes place Saturday June 26th to Sunday July 18th.        See  Official guide       For ITV4 coverage see  TV schedule       Daily highlights 7-8pm.       See viewing options if ITV Hub is not working well.
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  • Money for nothing – Dire Straits trubute band in Bourne, 12th Apr 2019.       Bourne CiCLE feltival men’s road race, 1st Sep.
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  • Queen on scheduled train:  This year, 2018, the queen caught a regular rail service to Norfolk for her Christmas break at Sandringham.       See pictures        In 2017 she recreated the first rail journey by a British monarch – Queen Victoria.
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  • Tour de France: 2018:   This year Le Tour takes place Saturday July 7th to Sunday July 29th, Did you know that one of the teams are using disc brakes on their bikes?
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  • General election, Thursday 8th June 2017 – Easy read manifestos
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  • Tour de France: 2016 coverage:  Stage 7 win.        In the end Chris Froome notched up his third tour win for Britain and the Sky team.        See:  Pictures         Official guide         Froome on 2016
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  • New Eurostar trains       Eurostar - Valero e320Eurostar are replacing their original French built train sets with new German Siemens trains.          There are plans to extend services to destinations in the Netherlands and Germany.          “In September 2013, Eurostar announced that its new service between London and Amsterdam, intended to begin operation in December 2016, would be operated by the trains.        The first Class 374 set entered service in November 2015, ahead of the full launch of the new type; the receipt of the safety authorization from the Intergovernmental Commission was received earlier than expected, allowing Eurostar to begin utilizing the type on a small number of services for in-service testing.”.       See Wikipedia for more information.
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  • “Einstein’s gravitational waves ‘seen’ from black holes.”       “Scientists are claiming a stunning discovery in their quest to fully understand gravity.”      See  article  complete with video clip and pictures.       In 1916 Albert Einstein predicted that gravity might be found to work like a kind of wave.       See:  PHD Comics         Wikipedia.
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  • Chris Froome wins the 2015 Tour de France cycle race.       See:  The finish       The day before.       The young Columbian runner up might be one to watch next year.
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  • A NASA space probe sped past Pluto in July 2015.      See: article – with pictures from the probe and illustrations.
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  • Steve Morse joined Deep Purple in 1994, and this recording of Smoke on the Water has a particularly good version of the guitar solo.      In the 1970’s most teenage boys knew the solo, and pretty much most of them with a guitar had a go at playing it.

Lincolnshire short breaks

Lincolnshire County Council offers a Short Breaks service for families living in Lincolnshire who have a child with a disability between 0 – 18 years.

Every-One provides subsidised short breaks on behalf of Lincolnshire County Council.     The picture on the left shows specially adapted accommodation that is available at Skegness.     There is a variety of activities on offer.

For more information see: