ME/Chronic Fatigue

Here is the NHS guide to Chronic Fatigue (CFS/ME).      Click icon to browse.

It seems to have taken a good few years for ME to become widely recognised across the medical profession as a genuine and debilitating condition but things seem to have improved a fair bit in that respect.      This has been in no small part due to the work of groups like the ME Association.      They are a UK national support group for people with ME.      Click icon for their website.

This is what they say about the management of the condition. Also, Dr Charles Shepherd writes for the ME association.      In a similar vein, here is his response to a BMJ article2021.      new

See also their factsheet: what you need to knowPDF

Also, tap button to download their factsheet, then open in PDF viewer.  

Download PDF – 1.4MB


Here is a friendly guide to managing the condition.       Click icon to view.

One approach to managing the condition is graded exercise.       This description incorporates insights into avoiding the push-crash cycle.      There has been disagreement related to this approach, though, in NICE’s draft guidance as recently as Aug 2021.     new

We, at GAIN, are not qualified to give advice, but if it seems difficult, perhaps making the amount of exercise more consistent from one day to the next may be worth a try. 

 Autism and ME/Chronic fatigue

Autistic burnout seems to be an informal phrase used in the autistic community.      Click play button to watch a video by Amythest Schaber.      She seems to have a clear understanding of the issues and presents them well.       Also:

  • They thought I was lazy … when I was just actually autistic.      This is one of many perceptive reflections on life through one female Asperger’s lens.      See article.
  • Is it just me, or do other people with autism feel tired all the time?      See autism & tiredness to view article.
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