Opinion – 2

Lack of empathy

This article is about the effects of caring for someone with autism.        This stress reaction has been named Ongoing traumatic relationship syndrome (OTRS), AKA Cassandra phenomenon or syndrome.    

Click icon for article.      It has revealing comments at the bottom from both sides.       Also, this article by a therapist with personal experience might be helpful.       updated

For parents of a child towards the lower functioning end of the spectrum see also More books and look for Charlotte Moore’s book, George & Sam.       It is about a book written with intelligence and insight.

What my son’s autism has taught me

An engaging tale and wide ranging critique of the state of play in the story of autism by the novelist David Mitchell.       The third item on my wishlist is, too predictably, better funding for education and adult care.     The status quo obliges sleep-deprived autism parents and sympathetic school principals to be frontline activists, just to obtain statutory minimums.     This is inhumane and illogical.

The book Fall Down Seven Times, Get Up Eight mentioned in the article above can be found on Amazon, among other places.        See also Interview of the young Japanese author of the book.

  A family doctor’s failings

This is a story of a mother’s struggle to get appropriate treatment for her daughter.

I had to practically beg the receptionist to ask the GP to come out to the car as we could not get my daughter out of the car.  …       I then spent 5 minutes explaining why we would never give medication to her in this way and that in order to give it under a GA we would have to call a best interests meeting.

Click icon for full text.

Children’s services

Lincolnshire Children’s Services, including those for disabled children, were rated outstanding in 2019 but several people have posted their disagreement on Facebook.      Parents may see a connection with the following articles:

  • Charities say that children’s services in England are in financial crisis.       See article
  • Parents are sometimes blamed for their children’s problems.       See article
  • Children on the spectrum can find themselves without a school place for quite some time.       See article
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